Dec 05, 2025

A time of reflection and thankfulness

It's been a minute since I have done an update, and I apologize for...

Nov 21, 2025

Miami

It's been one week and a day since our trip to Miami. I apologize t...

Nov 12, 2025

GI doc and God’s fingerprints

We had an appointment this week with GI. It went well, and he is ha...

Nov 02, 2025

Dead flowers, green shoots and mitochondrial disorder

It has taken me a few days to update b/c we have been going through...

Oct 28, 2025

The toothless wonder

I have several things to share but for the moment, I just want to c...

Oct 15, 2025

Day 15 … and some updates

It has taken me several days to write this update bc the last day w...

Oct 10, 2025

Day 13 & 14

Well, as you see in the picture, he is MUCH stronger now than he wa...

Oct 07, 2025

Day 12

Another both/and day friends.Dr. A came today and was THRILLED with...

Oct 07, 2025

Day 10 & 11

Wow.Day 10 & 11 have been big days. I’ve had to just sit and po...

Oct 03, 2025

Ability: Day 8 & 9

So many wonderful things are happening at Ability right now. It’s t...

Sep 30, 2025

Day 6, 7 & Dr. A

Whew! It’s been a whirlwind these past two days at Ability. All goo...

Sep 27, 2025

Day 4 & 5

First of all, thank you so much for those of who who brought meals....

Sep 24, 2025

Ability Day 2 & 3 plus GI Map

Wow. What an amazing 3 days.I didn’t post yesterday bc truthfully t...

Sep 22, 2025

Ability - Day 1

Today was a good start.Thankfully, Zeke slept through the night - f...

Sep 17, 2025

IVs, Ability and No Bed

So much to update!First, we are praising God bc He provided an IV i...

Sep 12, 2025

Endo, Functional Doc and … Miami?!?

Friends,“If you look at the world, you'll be distressed. If you loo...

Aug 30, 2025

Wow

Jon and I want to thank you all for your prayers, donations and tex...

Aug 28, 2025

ER on Tuesday… sigh

Friends,We are weary.We had another ER visit. Zeke’s quest lab show...

Aug 25, 2025

How’s Zeke?

I love this question and I find it to be so challenging.I love this...

Aug 17, 2025

Staycation

This week we were blessed to have a week of staycation. Nothing is ...

Aug 06, 2025

Embracing the moments

I apologize for not updating more quickly this week. We are quite e...

Aug 03, 2025

ER again…

Sigh.Yesterday, we were at the ER again. A praise was that our fav ...

Aug 02, 2025

Praising God in even the baby steps

As you know, we have been getting Zeke’s labs every 4 weeks.1st lab...

Jul 31, 2025

Exciting news and tricky news

We saw Dr. Chung yesterday and he was very impressed on Zeke’s neur...

Jul 26, 2025

Week 8 down

Well thank you for your prayers and your encouragement. Week 8 is d...

Jul 22, 2025

Storm rolling in?

Last week Zeke got to have another camp with Audrey. He had a lot o...

Jul 17, 2025

Music man

Zeke has been having a lot of fun with his new curriculum- Color me...

Jul 06, 2025

Happy 4th and fun updates

I hope each of you enjoyed the 4th! We saw the boat tour in Ft. Pie...

Jun 30, 2025

Looking fly…

All the boys got haircuts at the barber shop and are so happy to be...

Jun 25, 2025

Please advocate for us!

Friends, I have recently been made aware of a bill that is active o...

Jun 23, 2025

Camp and the waiver

We finished camp with a bang - and had so much fun. This picture is...

Jun 19, 2025

Church camp

We got to do church camp this week. It’s been a lot of fun. The boy...

Jun 14, 2025

A little of this, a little of that…

This week I didn’t update as much as I wanted but I was really tryi...

Jun 07, 2025

All About Math

The last part of this week has been beautifully uneventful. Zeke is...

Jun 04, 2025

Doctors, Plans and God’s Goodness

I’m happy to report that Zeke has been bouncing back faster than he...

May 30, 2025

Homeward Bound

We are headed home.Picture is of Zeke with his buddy, Mr. Rey, who ...

May 30, 2025

Hospital update

We are in a holding pattern until Zeke can get some feeds down and ...

May 29, 2025

Hospital… again

Friends, we are exhausted with this roller coaster. I’m sure you’re...

May 27, 2025

First 5k!

Zeke, Zane, Jon and Zeke’s angels (see what I did there? Zeke’s ang...

May 24, 2025

Therapy, homeschooling and waiting.

The picture attached is Dr. Chung, Zeke’s functional neurologist. Z...

May 18, 2025

Red light and boys weekend

We are very excited for Zeke to have his new red light belt so we c...

May 12, 2025

Progress!

Zeke is getting stronger and it is always so mind blowing to me. He...

May 05, 2025

APD update

Hello friends! I wanted to give a quick update for today, as we nee...

Apr 30, 2025

More praises!

I’m excited to share some more praises - thank you for those faithf...

Apr 26, 2025

Grant Awarded

Friends,Please take a moment with me and praise the Lord for the gr...

Apr 23, 2025

Grants and ADP

This pic is a few weeks old but one of my fav - he is such a little...

Apr 20, 2025

Happy Easter!

We just wanted to take a moment and say Happy Easter to all of you....

Apr 15, 2025

Thank you for praying! We got the results back from the GI map.

Friends, thank you so much for praying. I am happy to report that w...

Apr 14, 2025

ER visit …

Hello again friends.I was originally so excited to update about how...

Apr 10, 2025

Grants, homeschool and congestion

I was able to submit the grant I was working on! I’m very excited t...

Apr 08, 2025

Doctor appointment, APD follow up and grants

Hello friends!We had our appointment today with our GI, and it went...

Apr 04, 2025

APD visit

Today is a big day. A representative from APD (Agency for Persons w...

Apr 02, 2025

Transparency

I wanted this to be my first update on our new page launch, but the...

Mar 31, 2025

Home

We just got discharged.We still have a lot to find out about this g...

Mar 31, 2025

Admitted

We were admitted last night bc his Bicarb went from a 17, to a 15, ...

Mar 30, 2025

Hospital… again

We are in the ER again.Zeke woke up this morning and started vomiti...