Support Registry Update

Exciting news and tricky news

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Zeke's Journey
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We saw Dr. Chung yesterday and he was very impressed on Zeke’s neuro improvement. Pathways are being developed especially with his hand/eye and arm/eye coordination. We are praising God for this great report. 

Additionally, his eye coordination is very strong and can move in all different planes. Another huge praise. 

Zeke’s bicarb did drop a little over this past month and we had to go back to Quest today to get another lab draw. The good news is that is was not a huge drop and still working range!! But, after this lab, if it had dropped more, we are going to see his PCP to get an infusion in hopes of keeping him out of the hospital. 

Pls be praying for his bicarb to have gone up so we don’t have to do an infusion OR go to the hospital. And please keep praying for wisdom in all medical decisions. There are so many and I’m so tired. 

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Comments

Tania Kinney about 1 year ago

Praying for Zeke’s bicarb level to go up and wisdom and strength in all medical decisions.

Bethany Baker about 1 year ago

Praying!!

Christina Cunningham about 1 year ago

Oh such a sweet smile. Praying for you.