Last week Zeke got to have another camp with Audrey. He had a lot of fun painting with his hands - and feet. I should post some pictures of the things he made in his two camps (music camp with Kaily and art camp with Audrey) bc it’s pretty impressive. We are blessed that these two women love Zeke so much and were able to give Zeke a camp experience that he would not otherwise have. 

This also was a blessing bc Zane did lifeguard camp - which he LOVED and had been asking to do for 4 years but the camp’s youngest age is typically 9. It was one of his favorite weeks and we are grateful he was able to do this - it made him feel special. It’s such a hard balance, friends. Zane is a trooper with all of Zeke’s medical concerns but I feel such a pressure to make sure he still feels seen, loved, valued and special. Would you pray that Jon and I get that balance right? I do believe God is using all of this to mold Zane into an amazing man who is going to do amazing things because of these experiences. But it’s still hard on my heart. 

Anyway, Zeke always wants to do what Zane does so I was so glad he had his own camp. 

This week marks exactly 8 weeks since our last hospital visit. And interestingly, Zeke has had some tummy upset. Not hospital worthy, but enough that I’m on high alert. 

My anxiety is high and I can’t shake the feeling that another storm is rolling in. Will you pray for me? I know anxiety is not from the Lord and He is fully in control of all that is coming. I know I can trust Him. Now I want to trust Him without worrying at all. To just trust Him with a deep rooted knowing that He is good and I need not fear. 

Zeke has been on his new protocol for about 6 weeks now. It might be long enough to keep us out of the hospital, but it might not. Gut healing takes time. And we are not even 100% sure that is what’s causing it. It’s a working theory. 
Will you pray as the Spirit leads on this?