Support Registry Update

Fair Hearing and only God…

In support of
Zeke's Journey
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It’s taken me a few days to work through the fair hearing. It started out well, everyone was cordial. But then toward the end, the doctor who was representing Medicaid turned positively evil. He spoke such death over Zeke, and said horrible things about him - just to win a case! Mind you, he has NEVER laid eyes on my child and has zero right to make any comment on my child’s prognosis or progress. Instead, he should have been solely looking at what was reported by the people who actually treat Zeke. It’s mind blowing that these are the people making decisions. I won’t even repeat what he said bc it is so disgusting and disrespectful. 

I need to forgive him, and I will get there, but I’m still so appalled that I need to work through that first bc I feel like I can truly forgive. Wow. 

I hung up and burst into tears. It’s infuriating to be told things by someone who has never assessed your child and then bc of the way the hearing is set up, I had no opportunity to respond again. He really played dirty in closing arguments. It was awful, y’all. I kept having to remind myself that God is the one fighting for us, and He always has the final word. Not me. Not this doctor. God. 

One of the things that was so frustrating was that the doctor kept focusing on 2-3 lines in the paperwork that were completely false. Like totally. When I said that, he said, “well it’s in the paperwork so this is the facts.” As soon as i got off the phone and cried, I prayed, picked up the phone again and determined I’d find out how that wrong info got put in Zeke’s documents. I was on the phone about 1-1.5 hours until I finally found the right person to speak to. I shared the situation. They had to escalate it bc it was clearly a clerical error. 

I got a call later that day from a supervisor who stated she was going to issue a pre-authorization for his intensives  and that she would let the fair hearing office know. Wait, what?!?

Sure enough friends, I got a call from Ability and they have issued a pre-authorization number! Only God, seriously. If that doctor had not harped on that part of the documentation I would have missed it. Totally. God basically used that doctor to shine a big spotlight on it so I could get it addressed. I’m still mindblown. What an amazing God we serve who truly works in ways we would never think of. 

Things to continue praying for:
(1) That there are no hiccups or problems when they run this through the insurance and that it is covered with no problem. No more fighting needed. 

(2) For this to set the standard for future intensives - that it will always be covered. 

(3) that this battle can be set to rest for good. 

(4) Zeke is hitting a growth spurt - pls pray for his hamstrings to relax. Very important! 

Thank you all for being on this journey with me. Today’s picture is one of my favs bc seeing him sleep peacefully is such a giant gift to me. 

Merry Christmas! 

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Comments

Adele Robertson

Janina, you and your family are in my daily prayers. I started following your blog after Pam Miller shared your story with our church community group.
I’m responding to your need for legal guidance regarding Medicaid vs private insurance. An attorney friend of mine suggested you contact your local bar association. Our Orange County bar has a medically complicated committee that offers legal aid on a sliding scale. Perhaps your county bar association has something like this?
Keeping you in prayer 🙏 ❤️🙏
  • about 2 months ago