I apologize for not updating more quickly this week. We are quite exhausted- physically and mentally. Thank you for the prayers, texts, jumping into help, the Googan coffee… all such blessings. 

On Monday we went to Quest again for a blood draw. We discovered that his bicarb jumped up to a 26!!! We were shocked. And then rejoiced. 

We are still perplexed, however, bc he is still struggling with retching and still having the middle of the night wake ups with needing to vent him. Venting him means attaching a tube to his Gtube and allowing the stomach fluid and air to come out. 

Please rejoice with us bc of the 26 bicarb and please pray for God to intervene in this retching/tummy stuff. And pray for Jon specifically, bc he has sacrificially been getting up every night and handling the venting alone. He always tells me to go back to sleep. This has truly been a blessing and I am so grateful for his kindness in this way. 

We aren’t sure what will come next. This is plot twist in our original cycle. So it is unnerving. Normally, we get hospitalized, get bicarb, go home and start the cycle again. So praise God we did not get hospitalized and praise God his bicarb is a 26, but what now? It’s moments like this that I’m forced to truly depend on God and not worry about tomorrow. Just deal with today.

I love this quote from John Piper. It came at the perfect time. Bc this is not want I want for Zeke and Zane - hospital visits, constant blood draws, staying home more often than normal. I want so much more for them. But this is where we are today. So I’ll cry, wash my face, and embrace where we are today. 

As always, thank you for your support.