May 12, 2026

5/12/26

Thank you for all of you that came onto the prayer call last night ...

May 11, 2026

Mother’s Day is Missing

We see everyone’s lives moving on as normal, families having fun, c...

May 09, 2026

5/9/26

End of the week, we are spent. Trying to nap as much as the boys al...

May 08, 2026

5/7/26

We had a tough night last night again. Asher wasn’t resting much at...

May 06, 2026

Cinco de Mayo

Asher had a rough night last night. He was up for hours storming. S...

May 05, 2026

5/4/26

Sorry I haven’t posted an update in a few days. With the travel, I ...

May 01, 2026

4/30/26

I find myself going back and forth between confident, strong declar...

Apr 29, 2026

4/28/26

Asher slept more comfortably last night, much more relaxed than he ...

Apr 28, 2026

First HBOT

First treatment went well. Dr Harch seems to really care about what...

Apr 27, 2026

4/26/26

We’re in Louisiana. It took us about 12 hours to make the 8 hour dr...

Apr 25, 2026

Going Home Day

WE ARE HOME!I am so beyond grateful to all of you who have come bes...

Apr 22, 2026

4/22/26

No throwing up last night after real food! We’re just waiting on ca...

Apr 22, 2026

4/21/26

Asher had a rough night with coughing. He decided he didn’t like th...

Apr 21, 2026

4/20/26

So today this kid raised his knee toward his chest with his foot fl...

Apr 20, 2026

4/19/26

ABBA is so good. Asher’s been on HME the last 3 days. He’s been doi...

Apr 17, 2026

4/17/26

We need prayers for our hearts today. We know God is faithful and w...

Apr 15, 2026

4/15/26

Sorry, we haven't posted an update the last two days. Baby Ezra has...

Apr 12, 2026

4/12/26

We've been here long enough they made us move rooms. They said ever...

Apr 11, 2026

4/10/26

Today was a good day. Lips and mouth are looking more like my boy. ...

Apr 10, 2026

4/9/26

Surgeries today went well. We prayed over all the staff, rooms, ins...

Apr 09, 2026

4/8/26 Trach Tomorrow

We’ve been CPAPing the last several days. Asher went 11 hours non s...

Apr 07, 2026

4/6/26

After struggling yesterday with oxygen saturation due to over sedat...

Apr 05, 2026

4/4/26

Asher’s muscle tone is tight and he was biting his tongue overnight...

Apr 04, 2026

4/3/26 CPAP Trials

Big things today. We had a neighbor of a friend/relative that trave...

Apr 02, 2026

4/2/26

Pressure support is down to 10 on the ventilator and he’s doing gre...

Apr 01, 2026

4/1/26

Today we reduced our pressure support to 12 on the vent. He's doing...

Mar 31, 2026

3/31/26

I didn't get to write an update yesterday. Asher was up coughing a ...

Mar 30, 2026

3/29/26

Today was a good day. He's off the fentanyl drip. He's been moving ...

Mar 27, 2026

3/28/26

Yesterday afternoon they were able to get ENT at bedside to pry his...

Mar 27, 2026

3/27/26

This is so hard. I woke up this morning giving thanks for another d...

Mar 26, 2026

3/26/26

Still here, still on the ventilator, still being cooled, etc etc. W...

Mar 25, 2026

3/25/26

Lots happening today. They’re going to swap his femoral line for a ...

Mar 24, 2026

3/23/26-3/24/26

Breathing has settled down some, but still not getting full volume ...

Mar 23, 2026

3/22/26

I'm a day behind writing this. After Asher did great on his first c...

Mar 22, 2026

3/21/26

They took Asher for an MRI this morning. The EEG wasn't put back on...

Mar 21, 2026

Working on Weaning 3/20/26

Working on weaning the vent and sedation. I asked the staff about u...

Mar 19, 2026

He Wants Off The Vent 3/19/26

We are hanging in there. Every time they lower his sedation and do ...