So today this kid raised his knee toward his chest with his foot flat on the bed and was just chilling like that.  He also gave me a very obvious furrowed brow when I was suctioning him. 

Last night his mouth was closed for a while, while he was asleep. When his lips relaxed, I peeked in his mouth and his tongue was resting on the roof of his mouth, exactly where it’s supposed to be.  It hasn’t been there since we’ve been here! Same with the closed mouth. 

Today while sleeping he’s been moving his lips, kind of like babies do their little suckling movements. Is he nursing in his sleep or talking? Who knows… 

We’re still struggling with feeding and vomiting with coughing. I’m working on getting them to let me feed him blended food (been asking for this for weeks). It looks like they’re open to it now.  

I changed out his trach today with the trach nurse and she was so impressed she said she would check us off by Thursday this week.  So that leaves logistics for case management for discharge.  I’ve been asking them since before his trach was placed. 

We’re close! Cover us in prayer.