ABBA is so good. Asher’s been on HME the last 3 days. He’s been doing amazing.  They’ve been putting him on CPAP at night to let him rest. And yes, I got to hold him! 

He still has lots of secretions he’s coughing up.  He’s been on NAC since pretty early on in our stay that we were giving to boost his glutathione levels, but he’s been off Tylenol for a while now. In talking with one of the RTs last night asking for other ideas to clear the mucus she mentioned Mucomyst which is the brand name for NAC. She didn’t know nursing was giving it via G tube and I didn’t know it could be nebulized (I kept wondering why a drug for glutathione promotion was called mucomyst lol). I did a quick Google search and it shows that bioavailability via digestive system is only about 9% for mucus. We were able to have the docs change that, so he’ll get that be nebulizer from now on to help get the mucus out. 

We’ve also been watching his lips and face swell intermittently and haven’t been able to figure out why. My mom noticed it was after clonidine. We found out that can cause angioedema so they’re doing a rapid wean off that. It can’t be stopped cold turkey or it could cause dangerous rebound hypertension, especially since he’s also been on propranolol.  

He’s doing good with his Valium taper.  We’ve been able to get him down to one med for his bowels. We’ve been having an issue still with him vomiting when he coughs really hard. I realized a few days ago that he’s being way overfed. They had his dosing weight wrong when we got here, likely because of all the equipment they had in the bed when they initially weighed him. He stood on the scale the night before the accident at home and was just under 3 kg lighter than what they have for his dosing weight. They are calculating his nutritional needs based on that incorrect weight. I’ve been telling them for days that they need to decrease the nutritional requirements and it’s been a struggle to get the staff to make the changes because nutrition is not willing to recalculate. He’s actually gain almost 3 pounds since he’s been here.

Other than staff just needing to check us off on our training, we’re ready to bust out of this joint. Don’t stop praying now, you guys. You know what the needs are. We are still counting on full healing and restoration for our sweet boy. And we know ABBA is going to do it, but we need to petition courts of heaven. Scripture says that Messiah took on our infirmities and heals our diseases. I am looking forward to the day that I get to bring him back up here and show the doctors what our God did because of all of your prayers.  We welcome you guys to continue coming up and laying hands on him. Do not come with doubt and pray over our boy, though. Pray in full faith like James 5 tells us to. 

That reminds me, we had some ladies come by early this week that we had never met to pray over Asher. They were at a prayer group on the Saturday before and somebody drove by and told them about Asher. They came up not knowing anything about what room he was in asking if they could get up to see him. At that exact moment my husband was coming in with my girls. The desk staff obviously knows us by now. They pointed the ladies out to dad and he welcome to them up. They said powerful prayers over Asher and declared and decreed all things of life and rebuked all things of death and sickness. We don’t know who told them about Asher, but we are grateful and thank you to the ladies for following the prompting of the Holy Spirit for somebody that they had never met before along with so many of you who have stepped in and we have no idea who you guys are. What a lesson in serving your brethren.