End of the week, we are spent. Trying to nap as much as the boys allow. 

Biggest things we noticed the last two is waaaaay more hypertonia.  More than we’ve seen up to this point. Quite concerning. His muscles have got to be so sore. We also think he’s doing some swallowing. Secretions are way down. 

We’ve been doing the home care plan.  He squeezes his feet and hands so hard that he doesn’t allow the Saebo to do its work. I’ve been waiting for him to go to sleep to do his hands and feet, but he’s only sleeping 5 minutes at a time before he startles himself awake freaking out. 

We have no idea what is happening inside him right now, but we would love if you’d say some extra prayers for him. Prayers for rest, relief, and recovery.