Support Registry Update

Cinco de Mayo

In support of
Asher Blue
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Asher had a rough night last night. He was up for hours storming. Since he is trached, it makes everything echo and his hyperventilation was extremely loud. No one got any rest expect the baby. 

We need prayers for continued provision. While ABBA has provided lodging and funds for Asher’s HBOT, we have yet to get insurance to approve any supplies or equipment. This means everything Asher needs on a day to day basis is coming out of our pockets-syringes, trach supplies, feed tubing, etc.  It’s very costly and is making a hard hit on our finances. Some items we are not able to find at all so we are re-using and re-using what we have well past the point of when it should be discarded.  We don’t have a way to monitor his oxygen at night right now because the oximeter they gave us has weird connections and we can’t order the sensors anywhere. I ordered a different kind of pulse ox, but we are waiting for it to arrive. 

We finally got our pictures of Asher up in the room and I look at them and it’s almost like I don’t remember who he is. It’s been so long since I’ve seen him smile or heard him laugh, talk.  I look at my little boy right now and that is not my Asher, not the one we know. I feel guilty for thinking that.  

They increased Asher’s HBOT pressure today to 1.3 from 1.15.  I noticed immediately after that his pupils were smaller, not so dilated looking.  We also had another call with Dr Lucas for Neuro-rehab. Our Saebo finally arrived after having been back ordered for a month so we put that into action. We were able to achieve contraction on different body parts with relatively low numbers compared to a lot of the kids she said she treats that max out on the settings and still don’t have contraction response. This means his brain and body are talking! Praise Yah! 

Tonight is taco night at RMHCSLA for Cinco de Mayo and I’m honestly really looking forward to the tacos lol. 

We still don’t know how many dives we’ll be doing here yet. But we are trying to get to AZ when we finish up here and then head to an intensive with Dr Lucas. Those two will run right over $20k not including travel and lodging expenses. We also need to figure out how to get a home chamber as well-those run around $15k. MNRI will travel to us when we get home. Idk what that cost will be yet. Be in prayer for open doors. ABBA has made a way this far. Keep praying for miraculous healing for our sweet boy. 

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Comments

Yessi Argabright

😭👏🏻💗 Giving praise to The Holy One, goodness and mercy will follow you, precious Asher, blessed and loved one, The LORD Of Host continue to go before to set the crooked places straight, bring it all into alignment Father, every door meant to be opened for His divine purpose and destiny, open Father, and every single door that the enemy has been getting in to cause delay, or inflict pain, despair, chaos, CLOSE it Abba, increase their Faith Father, their capacity to believe you, let them SEE YOU move in glory and in power in the everyday seemingly ordinary days Lord, let them hear of joy and gladness, Oh Holy Righteous King, “let the bones that you have broken rejoice” according to your love and kindness, according to the mercy of Jesus, according to your Word, every single tongue that has risen against this precious family in judgement we refute in Jesus Name Lord, we know we fight not against flesh and blood, let your power be made manifest in their weakness oh Lord God of Jacob. Provide in abundance, pressed down and shaken together, so much that they cannot contain it Lord, we ask this all in the Name that is above every single Name, The Name of Jesus Christ Our Lord, Yeshua. Who lives forever! Amen Amen and Amen. Holy Father we ask that a record of this word be recorded in your books Lord and that this would would not return to you void but that it would do the thing for which you have sent it, let your Angels get to work in bringing this to pass for they indeed watch over The work of our hands to accomplish the plans of You Oh LORD, righteous King, According to your Word, watch over your word to accomplish it LORD. In Yeshuas Name, Amen
  • 6 days ago

Rose Gombos

Khazak, khazak, be strong, be strong Many are praying for Asher's healing and for his siblings and his parents. We pray that Adonai shines his countenance upon each one of you. May he grant you with His shalom, blessings, grace, loving kindness and mercy for your family. Blessed be His Holy name. For He is our Healer, grant a perfect healing to Asher's ailments. For you are a merciful healer. We pray you accept this prayer in mercy and favor for you are our Elohim who hears prayers and supplication. Baruch ata Adonai, who hears our prayers.
  • 6 days ago