Still here, still on the ventilator, still being cooled, etc etc. We spoke with Dr. Harch yesterday afternoon and he explained that in kids that have experienced a brain injury, their lungs become more reactive to higher concentrations of oxygen over longer periods of time. I discussed this with the hospital team. They lowered his PEEP to 5 overnight and today are weaning down from 40% fio2 by 5% every 4 hours to get him to room air concentration. They reduced his fentanyl and plan to reduce his versed tomorrow with plans to transition off the IV drips over the weekend.

The paralysis yesterday did not reveal what we hoped. They think it could be due to the infection so will continue to treat that for a few more days before considering more trials. They increased his propanolol in an attempt to control his muscle spasticity. Neurology hasn't laid a hand on him in the last two days. They just come by and ask if we have any questions and leave. I think based on the MRI they have given up.  But we haven't. Our God is mighty and able to heal with nothing more than a word. 

We spoke with the clinic in Arizona that does the stem cell treatments. Their waiting list is 2-3 years long.  We asked the doctor to make a call to a hospital in California that has capabilities to do HBOT on ventilated people and are waiting to see if they would be willing to accept him. 

Please continue to pray with us. We need strong, regulated breathing to get off the ventilator. Protection of his airway, mind body connection more perfect that before.  Our boy is a fighter, feisty and determined. That nature was put into him by He who knit him together. We are patiently waiting to see his beautiful face, to watch him run and climb, and SWIM, to hear him harass his sisters. We are speaking LIFE over this child.