Oct 07, 2025

Update 10/7

After 324 days, Joy is finally done with her helmet! We saw her cra...

Aug 18, 2025

Update 8/18

Joy is eating again!! Her bowels were totally cleared out overnight...

Aug 18, 2025

Update 8/17

After an emergency trip to Children’s ER this morning, Joy has been...

Aug 05, 2025

Update 8/5

So much has happened since the post-op in June!We started adding av...

Jun 24, 2025

Update 6/24

We had Joy‘s post-op visit today with her surgeon and from a surgic...

May 31, 2025

Update 5/31

We should be going home today!! The doctor wasn’t too concerned wit...

May 31, 2025

Evening Update 5/30

Today went really smoothly until about 7:15 this evening. Joy was h...

May 30, 2025

5/30 Morning Update

God bless our night nurse Liz. She placed Joy on an IV overnight an...

May 30, 2025

Evening Update 5/29

Well… we were all played for fools. What we thought was excellent p...

May 29, 2025

Surgery Update #4

We are now settled in our room for the next day or two. When I got ...

May 29, 2025

Surgery Update #3

Surgery is done!! I just met with Dr. Seaward and he said it went b...

May 29, 2025

Surgery Update #2

Joy is still in surgery and things are progressing as expected, pra...

May 29, 2025

Surgery Update #1

Joy just got taken back by the surgeon team. Luckily she had fallen...

May 22, 2025

Update 5/22

We are exactly a week out from Joy’s palate surgery and ~finally~ g...

Apr 20, 2025

Update 4/20

One month out from palate surgery and things are going, well, not a...

Mar 19, 2025

Update 3/19

Today we had Joy’s major Craniofacial Team appointment, which happe...

Feb 19, 2025

Update 2/19

I kept telling myself I would write another post after the next app...

Jan 16, 2025

Update 1/16

It’s been a quiet month in terms of note-worthy updates, which has ...

Dec 19, 2024

Update 12/19

After months of waiting and wondering, the results of Joy’s whole e...

Dec 09, 2024

Update 12/9

Finally finding the time to write out our recap of a HUGE two weeks...

Nov 26, 2024

Update 11/25

Joy got her helmet on Friday and I think we are both finally adjust...

Nov 22, 2024

Update 11/22

Here’s one big update post from what’s been happening the past week...

Nov 14, 2024

Update 11/14

We are going home today!!We finally got the green light to go home ...

Nov 13, 2024

Update 11/13

Introducing Joy’s new smile!! Her swelling has gone down sooooo muc...

Nov 13, 2024

Update 11/12 #2

When I tell you the Lord is in the details…All day we’ve been waiti...

Nov 12, 2024

Update 11/12 #1

Joy is currently in the Pediatric ICU where she’s been since post-o...

Nov 11, 2024

Surgery Update 3

Cleft portion of the surgery is done and went smoothly! ENT doctor ...

Nov 11, 2024

Surgery Update 2

The cranio portion of the surgery is done and it went great! The ne...

Nov 11, 2024

Surgery Update 1

Joy was taken back at 7:38 this morning. After about an hour and a ...

Nov 10, 2024

11/10 Update

‘Twas the day before surgery…Today has been a surreal day, knowing ...

Nov 06, 2024

11/6 Update

This morning I finally got the long-awaited pre-op phone call with ...

Oct 31, 2024

10/31 Update

Yesterday we got preliminary scans and measurements done for Joy’s ...

Oct 26, 2024

10/26 Update

I’ve made this Support Registry to keep all our updates and list of...

Oct 23, 2024

In Support of Joy Brown and Family

The Support Registry was just created.You can see all support oppor...