Updates for Sadie Long

Sep 15, 2026

September

We're home from Sadie's clinic visit!The girls and I took a quick t...

Sep 08, 2026

Life

I sat in church this past Sunday- and that in itself feels like a m...

Sep 03, 2026

Home

There's something about the feeling of coming home- driving on your...

Aug 31, 2026

We love you

Today was Sadie's four week clinic visit. From here on out she will...

Aug 26, 2026

Clinic update

There are words in life that you can't wait to hear:Congratulations...

Aug 25, 2026

Sadie on the Radio

When Sadie was on the Pediatric floor she would look forward to eac...

Aug 22, 2026

Rain doesn't last forever

There's a song by for King & Country called God Only Knows. The...

Aug 18, 2026

Steady now

I will start with- Sadie's heart numbers look good. Her EKGs and Ec...

Aug 16, 2026

Testimony

My pastor spoke this morning about spreading testimony, about getti...

Aug 13, 2026

Updates

A few Sadie updates-Our hope is that in a couple-few weeks that Sad...

Aug 10, 2026

Clinic Days

We have entered into clinic days.Thus far I've realized a few thing...

Aug 07, 2026

A walk to remember

Sadie walked out of the hospital today. We had to take a few breaks...

Aug 05, 2026

The Power of Hope

I will start with: Sadie's biopsy came back negative- she is NOT IN...

Aug 04, 2026

We Feel Your Love and Prayers

I asked Rose if I could provide today's update. Sadie was very nerv...

Aug 02, 2026

August

Somewhere between the pediatric floor's dog visits with Sally and t...

Jul 30, 2026

Family

Sadie has spent the last two days and nights completely unplugged f...

Jul 28, 2026

An Extended Stay

We have hit a bit of a bump. Typically around this time in the heal...

Jul 26, 2026

Electricity

Sadie was moved from one of the main larger operational rooms to a ...

Jul 24, 2026

A note from Rose

I'm sitting here in an ice tundra writing to you because Sadie love...

Jul 23, 2026

Grateful for another day forward

When I went to sleep last night the evening nurse was working on we...

Jul 21, 2026

Sweet Sleep

Today was a good good day.Sadie has been cleared by the GI team to ...

Jul 20, 2026

One week post op

Sadie has been working hard on recovery.She has turned a corner wit...

Jul 18, 2026

A little Sadie update

It’s Saturday.Sadie’s Kidneys are trying. The doctors are okay with...

Jul 17, 2026

A hard couple of days

Sadie had a really rough night. She hasn't slept through the night ...

Jul 15, 2026

Sadie got her heart pillow

Today’s update: Sadie sat up today, was able to stand up and take t...

Jul 15, 2026

1 am update

Sadie is a warrior.She had her breathing tube removed and replaced ...

Jul 14, 2026

New Mailing Address for Sadie (effective 14 July 2026)

This update is written by Rose's mom (Sadie's grandmother). I went ...

Jul 13, 2026

Belly of the beast

Nothing compares you for seeing your child in their most vulnerable...

Jul 12, 2026

A day to celebrate

Today was Harper's Birthday- I woke up this morning and sat beside ...

Jul 07, 2026

Where is God

There's a line in one of Sadie's favorite shows that the main chara...

Jul 06, 2026

This is hard

"This is hard" It's what we say when trying to accomplish something...

Jul 03, 2026

Everything in balance

Today was rough, tough, and downright heavy. I think I should have ...

Jun 29, 2026

Mail for Sadie

Sadie can get mail addressed as:Sadie Long4524UF Health Shands Hosp...

Jun 27, 2026

Hello from the ICU

Today is Saturday the 27th of June and Sadie is in the ICU at Shand...

Jun 22, 2026

Status 1A

UF called this morning, the entire team has reviewed her case and e...

Jun 19, 2026

The last of testing for transplant eval

We went into UF today for the last of testing for Sadie's heart tra...

Jun 11, 2026

Pensacola Trip- EP Cardiology update

Sadie, Harper and myself (mom) took a trip to Pensacola today to me...

Jun 03, 2026

One big step forward

From the start of Sadie's heart journey one of my best friends told...

Jun 01, 2026

Waiting for Echo and Follow Up - 1 June 2026

Today Sadie, Rose, Harper, and Will are at the hospital waiting for...

May 31, 2026

Love from a Grandmother

It's hard to comprehend your granddaughter going from a very active...

May 31, 2026

Fireworks, love and magic

We are blessed.The hospital room from Orlando faced Disney but it w...

May 31, 2026

Harper and Sadie

To know these two girls you would always know it's Harper and Sadie...

May 31, 2026

Face Paint, Ladybugs, and Animals

As we ask for help and your prayer we know a lot of you never met o...

May 30, 2026

Whatever it takes to win the battle

I get asked a lot "how are you doing?" and I usually have the same ...

May 28, 2026

A day of thanks

The last couple of months Sadie has pretty much been in the hospita...