Support Registry Update

Sadie got her heart pillow

Sadie Long photo
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Sadie Long
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Today’s update: Sadie sat up today, was able to stand up and take two steps and sit in the bedside chair. She stayed in the chair for several hours (sleeping) but she stayed. The movement helps her lungs drain any excess fluid and gives her body a different position to be in. 

It was hard. It hurt. A lot. She yelled at her nurses the entire time. But she did it. They gave her the heart pillow to grip onto. The pressure from hugging it helps alleviate the pain she’s feeling from moving. 

They’re starting to step her down on her medications which will keep her more awake and aware- but will also cause her to feel a lot more. It’s a necessary step. They have to get her off her suppressing meds to be able to access her heart function off it. The doctor is hopeful in the next couple of days her chest tubes will be able to come out and that will be the turning point in a lot of her pain. 

Sadie also started to cough on her own today- which her nurse said for two days post op was very impressive. 

They continue to monitor her blood work and the function of the rest of her organs and tweak her medication as needed. Currently our downfall is fluid- Sadie’s body is holding on to excess fluid which is putting pressure on her heart. They’re working to shed that fluid and hopefully she’s able to get it off and keep it off. 

Overall it was a good day. We’re inching our way forward. 

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Comments

Donna Pierson 15 days ago

Such positive news. Our prayers are being answered, and she is such a little trooper.

Pamela Mann 15 days ago

Great news. Sadie is a very strong girl, just like her Mama. The prayers continue to go her way, and yours. Prayung that tomorrow will be anither successful day and that the fluid will continue to leave her body so she will be in less pain, and that she can take more steps. Sending love, courage and strength and lots of virtual hugs.

Funensun1 15 days ago

Praying every day for constant improvement which I see happening, God is working , love and blessings to all .

Norm Lane 14 days ago

Such a courageous little lady! Great and positive news! ❤️ That heart pillow is your best friend ….second only to your mom and all the nurses and doctors