The last of testing for transplant eval
In support of
Sadie Long
View Support Registry
Sadie Long
We went into UF today for the last of testing for Sadie's heart transplant evaluation.
I can't say enough positive things about the entire UF Gainesville team. They are kind and genuine people that make us feel like family. We had to get up early for Sadie's first imaging appointment and unfortunately she had to fast so as the morning went on and she couldn't eat and still had to take all of her medications- she started to feel a bit lousy. BUT the entire team helped her, supported her and got her through it.
We met with Sadie's newest doctor today, her oncologist. Unfortunately they did find that she's predisposed to a higher risk of cancer based on her genes- fortunately it's something we are aware of now and can keep an eye on before it becomes a major problem. After her transplant Sadie will be on medication that suppresses her immune system and raises the odds of the cancer manifesting. The positives here are abundant, the type of cancer that she's tested for is a very low "good" kind, it doesn't manifest until later in life, and the brightest spot: she now has an amazing oncologist that's already on her team. He's already planning on how to follow up post transplant and the different ways we can deal with anything that may arise.
The last bit of our day was a true blessing. Sadie needed some special imaging done and it was going to require contrast dye which would require another IV for her- Sadie is kind of tired of being poked and prodded, the thought of another IV so soon really bummed her out. BUT her newest doctor was able to give us the good news : NO DYE NEEDED. Small miracle. Thankfully she didn't have to have another IV and the entire imaging took about 5 minutes.
We needed this win. Sadie needed it, I needed it. An easy day of testing with people that are kind and very good at their jobs. Thank you Jesus.
I'm happy to write that as I'm sitting here updating you all Sadie and Harper are enjoying pizza- She's eating so well today. Shout out to Blaze Pizza, they make vegan pizza and do sides of pesto sauce for dipping. Sadie approved.
Thank you for being a part of this journey with us.
I can't say enough positive things about the entire UF Gainesville team. They are kind and genuine people that make us feel like family. We had to get up early for Sadie's first imaging appointment and unfortunately she had to fast so as the morning went on and she couldn't eat and still had to take all of her medications- she started to feel a bit lousy. BUT the entire team helped her, supported her and got her through it.
We met with Sadie's newest doctor today, her oncologist. Unfortunately they did find that she's predisposed to a higher risk of cancer based on her genes- fortunately it's something we are aware of now and can keep an eye on before it becomes a major problem. After her transplant Sadie will be on medication that suppresses her immune system and raises the odds of the cancer manifesting. The positives here are abundant, the type of cancer that she's tested for is a very low "good" kind, it doesn't manifest until later in life, and the brightest spot: she now has an amazing oncologist that's already on her team. He's already planning on how to follow up post transplant and the different ways we can deal with anything that may arise.
The last bit of our day was a true blessing. Sadie needed some special imaging done and it was going to require contrast dye which would require another IV for her- Sadie is kind of tired of being poked and prodded, the thought of another IV so soon really bummed her out. BUT her newest doctor was able to give us the good news : NO DYE NEEDED. Small miracle. Thankfully she didn't have to have another IV and the entire imaging took about 5 minutes.
We needed this win. Sadie needed it, I needed it. An easy day of testing with people that are kind and very good at their jobs. Thank you Jesus.
I'm happy to write that as I'm sitting here updating you all Sadie and Harper are enjoying pizza- She's eating so well today. Shout out to Blaze Pizza, they make vegan pizza and do sides of pesto sauce for dipping. Sadie approved.
Thank you for being a part of this journey with us.
Comments
Tom Giddens about 1 month ago