Grateful for another day forward
In support of
Sadie Long
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Sadie Long
When I went to sleep last night the evening nurse was working on weaning Sadie off her IV blood pressure medication. It's something the day nurse had almost completed but then Sadie had a violent rebound when it was completely weaned and they had to go back onto the IV medication and administer more of an oral dose to help balance it. Its been the theme of her recovery so far, increase one thing to decrease another and keep going until there's a problem- solve the problem by any and all means and then move along. When I woke this morning Jordie, her night nurse, had already switched with the day nurse, but she had done it- she got Sadie all the way off both IV drips that controlled her blood pressure. I'm going to hug Jordie the next time I see her. Sadie was able to have her central line in her neck removed this morning because of it.
Earlier this afternoon after proving to be stable all day they made the decision to remove the arterial line in her wrist. She will continue to have her PICC line until the day we leave the hospital but having those lines removed were HUGE in terms of progress, comfort, and her ability to be more mobile.
Sadie has gone on four walks today down the hall way- that's a record for her. She's also able to start to stand at the sink and brush her teeth since she doesn't have the bulky lines any longer.
Her Kidneys are playing nice since their jump start and have been working well- today they will stop the medication that makes them work harder and allow them to do their own pace again.
Now it's time to focus on her new heart- her big big heart that holds all the love she's been getting. It's pushing on her lung and causing it to partially collapse because of it's push- the team is keeping any eye on it and making sure there's nothing trapped in it- no fluid build up- no pockets of air not moving- and it just might be that her big heart will always push on it- that's to be determined yet.
The heart itself is also still being externally paced- we will address that tomorrow- but for today- we bask in the victory of everything that is working and give the rest to God.
She's amazing- Sadie is an absolutely incredible little lady.
Earlier this afternoon after proving to be stable all day they made the decision to remove the arterial line in her wrist. She will continue to have her PICC line until the day we leave the hospital but having those lines removed were HUGE in terms of progress, comfort, and her ability to be more mobile.
Sadie has gone on four walks today down the hall way- that's a record for her. She's also able to start to stand at the sink and brush her teeth since she doesn't have the bulky lines any longer.
Her Kidneys are playing nice since their jump start and have been working well- today they will stop the medication that makes them work harder and allow them to do their own pace again.
Now it's time to focus on her new heart- her big big heart that holds all the love she's been getting. It's pushing on her lung and causing it to partially collapse because of it's push- the team is keeping any eye on it and making sure there's nothing trapped in it- no fluid build up- no pockets of air not moving- and it just might be that her big heart will always push on it- that's to be determined yet.
The heart itself is also still being externally paced- we will address that tomorrow- but for today- we bask in the victory of everything that is working and give the rest to God.
She's amazing- Sadie is an absolutely incredible little lady.
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