1 am update
In support of
Sadie Long
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Sadie Long
Sadie is a warrior.
She had her breathing tube removed and replaced with a high flow pulmonary cannula last night.
The goal for the day was to try to get to a sitting position- that goal was scrapped when Sadie’s stats started to trend down and then in a blink of an eye she started to dip on everything. They found two things. The first is that Sadie’s new heart is big (it had to be to fill the space of her old heart since it was so enlarged) but because of the way it’s sitting it’s having a hard time squeezing at the top. They’re confident that when swelling goes down that the squeeze will increase and that she’ll grow into the new heart.
The bigger problem today was that Sadie had a medical IV line in her neck that was leaking. It could have happened at any time, she’s sedated and eight- she doesn’t have any real control over her head and the way she moves it right now. But because it was leaking she wasn’t getting the meds they’d been sending through that line and her body was suffering because of it. They were able to increase other meds and get everything back on course by rerouting those meds to her PICC temporarily and then sedating her further and replacing the IJ line. Sadie spent the majority of the morning battling the problem and then the majority of the afternoon asleep from heavy sedation.
When she came around this evening she was able to sip on water and she’s been speaking to me and her nurses. Unfortunately she’s in a lot of pain, so the majority of her talking is telling us she’s uncomfortable or asking to be repositioned. She also still has a UTI and a small fever associated with that- however it’s much better than yesterday.
Her lab work this morning wasn’t looking the best but all afternoon her labs have come back trending in the right direction and look much better.
The doctors have said the next couple of days are going to be a roller coaster- it’s a marathon and we take it one day at a time. They are all happy with her progress and think she’s a rock star.
As long as she stays in the green the goal for tomorrow is to sit up and try to stand.
She had her breathing tube removed and replaced with a high flow pulmonary cannula last night.
The goal for the day was to try to get to a sitting position- that goal was scrapped when Sadie’s stats started to trend down and then in a blink of an eye she started to dip on everything. They found two things. The first is that Sadie’s new heart is big (it had to be to fill the space of her old heart since it was so enlarged) but because of the way it’s sitting it’s having a hard time squeezing at the top. They’re confident that when swelling goes down that the squeeze will increase and that she’ll grow into the new heart.
The bigger problem today was that Sadie had a medical IV line in her neck that was leaking. It could have happened at any time, she’s sedated and eight- she doesn’t have any real control over her head and the way she moves it right now. But because it was leaking she wasn’t getting the meds they’d been sending through that line and her body was suffering because of it. They were able to increase other meds and get everything back on course by rerouting those meds to her PICC temporarily and then sedating her further and replacing the IJ line. Sadie spent the majority of the morning battling the problem and then the majority of the afternoon asleep from heavy sedation.
When she came around this evening she was able to sip on water and she’s been speaking to me and her nurses. Unfortunately she’s in a lot of pain, so the majority of her talking is telling us she’s uncomfortable or asking to be repositioned. She also still has a UTI and a small fever associated with that- however it’s much better than yesterday.
Her lab work this morning wasn’t looking the best but all afternoon her labs have come back trending in the right direction and look much better.
The doctors have said the next couple of days are going to be a roller coaster- it’s a marathon and we take it one day at a time. They are all happy with her progress and think she’s a rock star.
As long as she stays in the green the goal for tomorrow is to sit up and try to stand.
Comments
Norm Lane 15 days ago
Dorothy Wendzicki 14 days ago