Support Registry Update

A little Sadie update

Sadie Long photo
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Sadie Long
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It’s Saturday.

Sadie’s Kidneys are trying. The doctors are okay with her output for the time being and are holding off on dialysis. They did place the line yesterday and the machine is moved to our room as a precautionary measure- she’s very much flirting with the line of needing it or not. As of this moment- her kidneys are hanging in there from their jump start yesterday. 

Sadie’s new heart is also having some trouble. The heart is big and needs swelling to go down to not be smushed- but Sadie is very swollen as she’s been retaining a ton of fluid- her body is working to try to alleviate that but it’s taking time. So while her Kidneys are having trouble they’re also causing trouble- but the doctors are focused on getting her Kidneys in good working order and hopeful the heart will follow suit. It will just take time.

Sadie started to express that she’s hungry today. Which is amazing, the doctors were going to give her until tomorrow to start eating before they inserted an NG tube or did IV nutritional supplements. We’re still flirting with that as well because she’s having a hard time keeping the nausea at bay after a bite. She’s starting with clear liquids and moving to broths, we will see how she takes it. Slow and steady.

Sadie is much more aware today. She’s talking to all the doctors and nurses- she’s very responsive and able to articulate what’s bothering her and how she’s feeling. She’s definitely a bit mentally overwhelmed today. Up until now she’s been under some form of sedation or heavy relaxant. Today was Sadie’s first real day of seeing/feeling everything that’s going on fully and really taking it in. She’s learning how to manage her pain slowly. 

The greatest news of the day is that Sadie was able to get out of bed (with help) and stand. She even took several steps to the bedside lounge chair. She did this twice so far. That’s some serious work for her. Tomorrow the goal is to walk down the hallway. 

We’re still in the woods, but she’s making progress. The entire staff here is absolutely incredible. I know God lead us here- and he blesses her with angels in nurses and doctors every single day.

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Comments

Nkronenb 12 days ago

pray that baby steps turn into giant leaps! continued prayers for the Lords blessing on this beautiful child.

Von Ward 12 days ago

Hang in there Sadie! We all are praying for you! One day at a time is all we can handle! Hope you get feeling better soon!

Debtruff68 12 days ago

Praying your day will be better than yesterday , and Gods hand is on you and your mom

Terri Ward 12 days ago

Sending prayers for you Sadie. Take little steps and trust God to help you. You are loved by many and the Lord is watching over you. I will also pray for your family and all the doctors and nurses taking such good care of you. Remember Jesus loves you, trust in him!♥️🙏🏼✝️

Funensun1 12 days ago

Keep strong in the Lord, we are praying for a better day today.