Support Registry Update

One big step forward

Sadie Long photo
In support of
Sadie Long
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From the start of Sadie's heart journey one of my best friends told me 'You take this one inch at at time, every inch forward is progress" and I have held on so very tightly to that saying. The last couple of weeks we've been in limbo with Sadie's medications and trying to get all of her additional testing done for her completed heart transplant evaluation. There are two major tests we have to complete before the process can move forward and they have to be done in Gainesville with very specific doctors. We are grateful to have gotten confirmation today that we are officially scheduled for the week of June 15th to complete these tests. To say that this is a small miracle is not an understatement. UF is an amazing facility- and they treat a lot of patients and a lot of them are in the same type of hurry that we are, but we're all in this together and we hold on together, and we move forward together. 

I am grateful for the amazing nurses and doctors and teams that work for patient advocacy and to make sure that we're all taken care of. "In God's time" has never rang truer for us. 

We're gearing up for our road trip, loading the "A Week Away" soundtrack, and packing all the snacks.

Thank you for doing this with us 
#teamSadie


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