Testimony
In support of
Sadie Long
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Sadie Long
My pastor spoke this morning about spreading testimony, about getting uncomfortable and standing up and saying 'send me Lord' and it sits in my soul.
Sadie has a shirt that spells out Faith and each letter has several scripture verses in it.
Romans 10:17, Matthew 21:22, Psalms 37:5
Mark 11:24, Ephesians 2:8, James 2:17
Proverbs 3: 5-6, John 3:16, Hebrews 11:1
Throughout her hospital time Sadie went inward with her feelings and thoughts, not often coming out of her own mind as she processed everything. I worried a lot of days earlier on that she was cracking and breaking and that I couldn't do anything to help hold her together. Then one day a little girl, smaller than Sadie, walked by our doors and wall--which were all glass so you could see in easily--and she had very clearly just had her transplant and was on her first walk- those first steps outside the hospital room, the hard steps of pushing your body and feeling like just another step might take every single ounce of life you have. She was struggling, moving slow but she was doing it- and she only had her nurse with her. For whatever reason, she was alone- and immediately Sadie perked up. She asked me why she didn't have her mommy with her, why she was alone- and when we walked by her room and saw her all alone every time it broke a bit of my heart- but Sadie wasn't having it. She started to wave to the little girl, send her paper flowers, wave as we walked by her room. God sent Sadie to this little girl- and Sadie answered. Because of the barrier precautions we couldn't bring them together to play, but they formed their own relationship- smiling when they saw each other- stopping what they were doing to send encouragement as the other one walked by the glass doors- in the middle of pain and discomfort and upset- these two little girls said 'send me Lord' and showed up for one another.
I had a friend tell me recently "It's just so crazy that you were able to catch this" talking about Sadie's journey and my immediate response was "It's all just so- Divine". I stand by that. Sadie's life is testimony.
That she had this disease and lived so long without incident- That's God
That she had the right people- the exact right person there for her the day that she passed out- thank you Lisa- That's God
That after a dozen cardiologists she was put in front of the one (Thank you Dr. Tisma) that instantly recognized a disease that is so rare papers are being written off her experience for reference- There's God
That she was diagnosed two days before a world wide cardiology conference that her case was presented at so doctors from the middle east, Australia and Greece that have seen rare cases like hers could all weigh in on her and create a plan for her- That's God
That every single step of the way here she was not dropped through any small crack, that she was monitored via a heart strap and brought in for emergency surgery for an ICD- That she survived abnormal rhythms that would have stopped other hearts- that she didn't go into cardiac arrest- that one of the best EP Cardiologists in the US grabbed onto her and got her through an emergency devise placement and then immediately got her to UF- That's God
That one of the best pediatric transplant teams immediately accepted her and got her to the top of the transplant list- that her wait was merely weeks instead of months- that there was a perfect heart match for her- That's God.
That through every dip of her recovery she always pulled through- she had the right doctor at the right moment making the hard decisions and backing them up- fighting for her- doing exactly what she needed- That's God.
That every single step of this journey has been touched with church, community, and love, and an outpouring of support from family, friends and strangers alike- that our family has been held, and taken care of, and so blessed with prayer- that's all of you saying 'send me Lord' and he did- and you came.
But God.
I wrote to Sadie's first EP Cardiologist yesterday, Dr. Tisma. The woman that saw her and said 'this is what this is-this is what we need to do- this is how it's going to work', she's been keeping up with Sadie, and we both smiled as I sent her the picture of Sadie smiling- her face healthy- the color in her cheeks- her hair wild but long- and the life so vibrant in her eyes.
That's God.
Sadie has a shirt that spells out Faith and each letter has several scripture verses in it.
Romans 10:17, Matthew 21:22, Psalms 37:5
Mark 11:24, Ephesians 2:8, James 2:17
Proverbs 3: 5-6, John 3:16, Hebrews 11:1
Throughout her hospital time Sadie went inward with her feelings and thoughts, not often coming out of her own mind as she processed everything. I worried a lot of days earlier on that she was cracking and breaking and that I couldn't do anything to help hold her together. Then one day a little girl, smaller than Sadie, walked by our doors and wall--which were all glass so you could see in easily--and she had very clearly just had her transplant and was on her first walk- those first steps outside the hospital room, the hard steps of pushing your body and feeling like just another step might take every single ounce of life you have. She was struggling, moving slow but she was doing it- and she only had her nurse with her. For whatever reason, she was alone- and immediately Sadie perked up. She asked me why she didn't have her mommy with her, why she was alone- and when we walked by her room and saw her all alone every time it broke a bit of my heart- but Sadie wasn't having it. She started to wave to the little girl, send her paper flowers, wave as we walked by her room. God sent Sadie to this little girl- and Sadie answered. Because of the barrier precautions we couldn't bring them together to play, but they formed their own relationship- smiling when they saw each other- stopping what they were doing to send encouragement as the other one walked by the glass doors- in the middle of pain and discomfort and upset- these two little girls said 'send me Lord' and showed up for one another.
I had a friend tell me recently "It's just so crazy that you were able to catch this" talking about Sadie's journey and my immediate response was "It's all just so- Divine". I stand by that. Sadie's life is testimony.
That she had this disease and lived so long without incident- That's God
That she had the right people- the exact right person there for her the day that she passed out- thank you Lisa- That's God
That after a dozen cardiologists she was put in front of the one (Thank you Dr. Tisma) that instantly recognized a disease that is so rare papers are being written off her experience for reference- There's God
That she was diagnosed two days before a world wide cardiology conference that her case was presented at so doctors from the middle east, Australia and Greece that have seen rare cases like hers could all weigh in on her and create a plan for her- That's God
That every single step of the way here she was not dropped through any small crack, that she was monitored via a heart strap and brought in for emergency surgery for an ICD- That she survived abnormal rhythms that would have stopped other hearts- that she didn't go into cardiac arrest- that one of the best EP Cardiologists in the US grabbed onto her and got her through an emergency devise placement and then immediately got her to UF- That's God
That one of the best pediatric transplant teams immediately accepted her and got her to the top of the transplant list- that her wait was merely weeks instead of months- that there was a perfect heart match for her- That's God.
That through every dip of her recovery she always pulled through- she had the right doctor at the right moment making the hard decisions and backing them up- fighting for her- doing exactly what she needed- That's God.
That every single step of this journey has been touched with church, community, and love, and an outpouring of support from family, friends and strangers alike- that our family has been held, and taken care of, and so blessed with prayer- that's all of you saying 'send me Lord' and he did- and you came.
But God.
I wrote to Sadie's first EP Cardiologist yesterday, Dr. Tisma. The woman that saw her and said 'this is what this is-this is what we need to do- this is how it's going to work', she's been keeping up with Sadie, and we both smiled as I sent her the picture of Sadie smiling- her face healthy- the color in her cheeks- her hair wild but long- and the life so vibrant in her eyes.
That's God.
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