Status 1A
In support of
Sadie Long
View Support Registry
Sadie Long
UF called this morning, the entire team has reviewed her case and evaluation and Sadie is being listed as a priority transplant- status 1A. Which means she will have to wait in hospital while we pray and wait for her donor heart. They are working on preparing a room for her and will let me know when one becomes available.
I'm getting ready to pack a suitcase for her and myself to begin our adventure there. I've taken to packing two suitcases for the hospital- one with clothes and necessities, the other with art.
This means it's time. It's time to start wrapping up life here in the home that has treated us with such loving care. It's time to kiss Harper and Will and hug them tight and begin our video calls and phone calls daily. It's time to start to figure out how to bridge the life from here to there. Our family will be moving to Gainesville. The panhandle just doesn't have the advanced care available that Sadie needs. We have an unknown amount of time to wait for a miracle heart and then we will have a solid year of recovery and checking in with specialists. We've decided we dont want to spend that time away from one another and we want to keep Sadie where she will be the safest.
I'm scared. I ask for your prayers. God knows. He's leading the way here. I know this is the path he would have us walk. I very much feel like a child dragging their favorite blanket in the dirt in protest on this walk- but I know the view he's giving us will be worth it. Stay with us please.
A lot of people have asked "what can I do, how can I help, what do you need?"
-Pray
-Dinner Meals for Harper and Will while we figure out our next steps.
-Boxes- If you have moving boxes, we're going to need them soon.
I'll keep you all updated- one inch at a time.
I'm getting ready to pack a suitcase for her and myself to begin our adventure there. I've taken to packing two suitcases for the hospital- one with clothes and necessities, the other with art.
This means it's time. It's time to start wrapping up life here in the home that has treated us with such loving care. It's time to kiss Harper and Will and hug them tight and begin our video calls and phone calls daily. It's time to start to figure out how to bridge the life from here to there. Our family will be moving to Gainesville. The panhandle just doesn't have the advanced care available that Sadie needs. We have an unknown amount of time to wait for a miracle heart and then we will have a solid year of recovery and checking in with specialists. We've decided we dont want to spend that time away from one another and we want to keep Sadie where she will be the safest.
I'm scared. I ask for your prayers. God knows. He's leading the way here. I know this is the path he would have us walk. I very much feel like a child dragging their favorite blanket in the dirt in protest on this walk- but I know the view he's giving us will be worth it. Stay with us please.
A lot of people have asked "what can I do, how can I help, what do you need?"
-Pray
-Dinner Meals for Harper and Will while we figure out our next steps.
-Boxes- If you have moving boxes, we're going to need them soon.
I'll keep you all updated- one inch at a time.
Comments
Linda LeCates about 1 month ago
Cheri Barkley about 1 month ago
Tom Giddens about 1 month ago
Donna Pierson about 1 month ago