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Sadie Long
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Sadie Long
I asked Rose if I could provide today's update. Sadie was very nervous and scared for today's CATH. She asked Rose last night if they could pray and asked her again this morning to pray. The CATH and electrical test took about two and a half hours. The doctors are satisfied with the electrical results. They also took a biopsy and we are waiting on those results. Rose will provide a better update tomorrow. We continue to ask for prayer.
I wanted to provide today's update because I wanted to share more of how it went. As Rose and I are waiting in the waiting room we see them wheel Sadie back into the ICU. Rose could not go back yet until they got Sadie resettled. After about ten minutes we hear a child screaming in pain, crying, and yelling to STOP, STOP.......IT HURTS......and we knew.....we knew that was our Sadie. Rose immediately jumped up and I know if she could physically she would have knocked those doors down. How traumatic it is hearing your child scream and cry out like that and you can't get to her, just to hold her hand, say you are not alone. After about five minutes the nurse came out and let Rose go back. About two hours later I received this text "She's finally starting to feel a little better, she had to stay laying flat for 2 hours". "Still waiting on biopsy but all the docs are happy with everything else".
I wanted to share with all of you how grateful Rose is for your love, support, and prayer. Today she had to dig really deep down and gather the strength to get through this and it helps so much knowing she's not alone.
I just delivered dinner to Rose and Sadie. Its going to be a special themed dinner. One of Sadie's favorite movies is coming on that she has been looking forward to and Rose is making it special.
As Rose and I sat there those two and a half hours we talked about a lot of topics but the main topic was Sadie's mental health. It's extremely hard being on the 10th floor in ICU with literally nothing to do. A lot of people ask how can they help and we ALWAYS say prayer because we truly believe there is power in prayer. But sending Sadie a card, letter, or even anything from her wish list really cheers her up. Right now Rose said Sadie is on the flower blossoming kit kick. She would be happy to make a million.
I can hear Rose now saying "mom" so I better get off. I will leave you with the last text I just received from Rose "she ate a lot of dinner, it was really good, we had a feast, it's the most I've seen her have since we've been here. I think it's the most I've had since we've been here. Small celebration dinner".
Thank you God.
I wanted to provide today's update because I wanted to share more of how it went. As Rose and I are waiting in the waiting room we see them wheel Sadie back into the ICU. Rose could not go back yet until they got Sadie resettled. After about ten minutes we hear a child screaming in pain, crying, and yelling to STOP, STOP.......IT HURTS......and we knew.....we knew that was our Sadie. Rose immediately jumped up and I know if she could physically she would have knocked those doors down. How traumatic it is hearing your child scream and cry out like that and you can't get to her, just to hold her hand, say you are not alone. After about five minutes the nurse came out and let Rose go back. About two hours later I received this text "She's finally starting to feel a little better, she had to stay laying flat for 2 hours". "Still waiting on biopsy but all the docs are happy with everything else".
I wanted to share with all of you how grateful Rose is for your love, support, and prayer. Today she had to dig really deep down and gather the strength to get through this and it helps so much knowing she's not alone.
I just delivered dinner to Rose and Sadie. Its going to be a special themed dinner. One of Sadie's favorite movies is coming on that she has been looking forward to and Rose is making it special.
As Rose and I sat there those two and a half hours we talked about a lot of topics but the main topic was Sadie's mental health. It's extremely hard being on the 10th floor in ICU with literally nothing to do. A lot of people ask how can they help and we ALWAYS say prayer because we truly believe there is power in prayer. But sending Sadie a card, letter, or even anything from her wish list really cheers her up. Right now Rose said Sadie is on the flower blossoming kit kick. She would be happy to make a million.
I can hear Rose now saying "mom" so I better get off. I will leave you with the last text I just received from Rose "she ate a lot of dinner, it was really good, we had a feast, it's the most I've seen her have since we've been here. I think it's the most I've had since we've been here. Small celebration dinner".
Thank you God.
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