Apr 16, 2026

Pulmonologist visit

Today Mack had his first appointment with this Pulmonologist since ...

Apr 05, 2026

More about HBOT therapy, our next endeavor!

Happy easter! He is risen.We got Mack back to church for the first ...

Mar 24, 2026

home blends and some expenses coming!

While on the keto diet (for almost a year) Mack has been on infant ...

Feb 11, 2026

How therapy went in Texas:

First of all, Thank you all so much! I still cant believe we were/ ...

Dec 18, 2025

Check out what's new with us!

First I want to highlight the two raffles that were held for us by ...

Nov 30, 2025

November was rough!

Mack has been sick since the 1st of November with Rhino virus which...

Nov 06, 2025

hospital admission and other updates

We got home from Mack’s admission for a cold yesterday afternoon. w...

Oct 16, 2025

Hallelujah!

Praise God for what we experienced in the last 48 hours.My dear fri...

Sep 29, 2025

Frequently asked questions:

Hopefully this gives everyone a well rounded perspective about our ...

Sep 21, 2025

Mack's first church service!

Today Blake and I made our way back to Crossroads in Doylestown and...

Sep 20, 2025

NeuroSolutions cost.

After exploring a Cleveland Clinic neurologist we have decided to s...

Sep 07, 2025

Mack is off of vigabatrin and we are going to a new neuro.

Mack's last day on vigabatrin was the 3rd. Since then we have notic...

Aug 21, 2025

The wean is almost over and all about our nurses!

Mack is going to be off of vigabatrin on 8/28. As the wean progress...

Jul 30, 2025

We are finally weaning vigabatrin

After a lot persistence and MyChart messages we have a wean schedul...

Jul 09, 2025

Funds utilized, and we saw the Naturopath!

We took Mack to see Dr. Stern at Pinnacle Health Family Chiropracti...

Jul 03, 2025

Home from Gtube surgery

Surgery went fantastic and Mack was perfectly stable during the who...

Jul 01, 2025

Neurosolutions consultation scheduled!

We are officially scheduled to have a telehealth intake consultatio...

Jun 29, 2025

Gtube Surgery = goodbye NGtube!

Mack will be undergoing a Gtube surgery Wednesday 7/2 after his FEE...

Jun 29, 2025

Mack’s other chronic health issues

Macks diagnosis list is lengthy to say the least, and began the sec...

Jun 29, 2025

How we got here

Mack was diagnosed with 2 genetic conditions after being admitted t...