Support Registry Update

Mack’s other chronic health issues

In support of
Mack Hofacker
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Macks diagnosis list is lengthy to say the least, and began the second he was born. We had no idea about any of them until he was handed to us while I was on the C-section table. The following months came with a 20 day NICU stay and dozens of appointments at Akron children’s. Every week we would get 2-3 new diagnosis. 

His health issues include: 
-Macrocephaly 
-Cleft palate 
-Ptosis (right eyelid)
-Failed hearing screenings 
-Cerebral ventriculomegaly
-Infantile spasms
-Bicuspid aortic valve
-Exotropia, alternating, intermittent
-West syndrome
-Cerebral heterotopia
-Hypotonia
-Obstructive sleep apnea syndrome, severe
-Central sleep apnea
-Oropharyngeal dysphagia, severe
-Pediatric feeding disorder, chronic

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