Updates for Eiley's Continued SMA Journey

Aug 27, 2026

CLIMB DMI Intensive — Week 2 💪🏼

Wow, this girl is really pushing hard. 🥹Erin is really fine-tuning ...

Aug 24, 2026

Eiley’s CLIMB Intensive - Week 1 💪🏽

We started Eiley’s 3-week PT/OT intensive in Springhill, TN, and ou...

Aug 17, 2026

We’re Over Halfway There 🤍

Wow!!! We are officially over halfway to our goal! 😭🤍We truly could...

Aug 13, 2026

One Week Out From MUSE Cells!! 🤍

We are officially one week out from Eiley’s MUSE Cell treatment, an...

Aug 09, 2026

Day 5 & 6: Continuing with Therapies 🇲🇽🤍

Friday and Saturday were focused on continuing with different thera...

Aug 06, 2026

Day 4: 10 Million Dezawa MUSE Cells (Intranasal) 🇲🇽🤍

Today Eiley received her final intranasal dose of 10 million Dezawa...

Aug 05, 2026

Day 3: 20 Million Dezawa MUSE Cells (IV) 🇲🇽🤍

Today was another big milestone as Eiley received 20 million Dezawa...

Aug 04, 2026

Day 2: 5 Million Dezawa MUSE Cells (Intranasal) 🇲🇽🤍

Today started with continuing to prepare Eiley's body for the MUSE ...

Aug 04, 2026

Day 1 at Neorgana 🇲🇽🤍

We officially completed our first day at Neorgana, and we're so gra...

Aug 03, 2026

We Made It To Mérida! 🇲🇽🤍

After a long 12-hour travel day, we finally made it to Mérida, Mexi...

Jul 28, 2026

5 Days Until Mexico: Prayers Appreciated 🤍

We leave for Mexico in just 5 days, and we couldn't be more excited...

Jul 13, 2026

Eiley’s Growing Independence

Over the last couple of months, we've really started to see Eiley's...

Jul 02, 2026

A Look Into Fine Motor Skills

While we spend a lot of time working on Eiley's gross motor skills,...

Jun 25, 2026

Eiley's Eating Journey: How Far She's Come

Eiley's eating journey has come such a long way! When we first star...

Jun 16, 2026

First Time Crawling Up Stairs!!!

When our daughter was first diagnosed with SMA Type 1, we were told...

Jun 08, 2026

Dates Confirmed & An Incredible Blessing

We officially purchased our flights and have our dates locked in fo...

Jun 03, 2026

Why We Use a Vibration Plate in Eiley’s Therapy Routine

The vibration plate is one of the many therapies we incorporate int...

May 27, 2026

Why We Started Chiropractic Care For Eiley

One thing many people may not know is that we’ve been taking Eiley ...

May 19, 2026

Healing Through Near-Infrared Light Therapy

We wanted to share a little more about one of the therapies we have...

May 12, 2026

Years of Hard Work, One Beautiful Breakthrough

When Eiley was born, she had very few reflexes, if any at all. Over...

May 04, 2026

New Gains at Home: Eiley’s Spinal Stimulation Progress

We wanted to share an update on something new we’ve recently added ...

Apr 28, 2026

A Big Week for Everett & Continued Progress for Eiley

We are so grateful for each and every one of you who has reached ou...

Apr 21, 2026

Over Halfway Funded for Treatment Round Two!

We’re incredibly grateful to share that we are now over halfway fun...

Apr 11, 2026

A Special Announcement 💜

We are officially a family of four! Eiley has already stepped into ...

Mar 31, 2026

Crushing It in Aquatic Therapy: A Big Milestone

Aquatic therapy continues to be one of her most impactful—and most ...

Mar 19, 2026

Major Milestone: First Treatment Fully Funded

We are incredibly grateful and excited to share a major milestone i...

Mar 17, 2026

The Work You Don’t Always See

Even though it’s spring break, our girl is still putting in the wor...

Mar 10, 2026

Carrying Her Forward: Our Journey Raising a Child with a Rare Genetic Disorder

Becoming a mother changes your life.Becoming the mother of a child ...

Mar 04, 2026

Why Ballet Means More Than Just Dance for My Daughter

Trying to find ways for a child with disabilities to feel included ...

Mar 02, 2026

Inside Eiley’s Weekly Therapy Routine

When we aren’t traveling for therapy intensives or fundraising for ...

Feb 28, 2026

First Down Payment Secured for August Treatment!

We’re so excited to share that we are officially able to make the f...

Feb 21, 2026

Eiley's Special Connection to Baby Brother

Before I even knew I was pregnant, Eiley announced it to a whole ro...

Feb 20, 2026

Walking This Road Again — Differently

When we found out we were pregnant with our second baby, we knew th...

Feb 19, 2026

MUSECells: What Sets Them Apart

Many of you have asked what makes DEZAWA MUSECells® different — and...

Feb 18, 2026

Navigating Falls: Eiley's Courage and Our Hopes for Healing

Part of what comes with Eiley having SMA is that she doesn't have t...