Support Registry Update

Dates Confirmed & An Incredible Blessing

Eiley's Continued SMA Journey photo
In support of
Eiley's Continued SMA Journey
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We officially purchased our flights and have our dates locked in for Eiley’s first MUSEcell treatment week: August 2–9! πŸ™ŒπŸ½

As everything starts coming together, we're feeling more excited and hopeful about what this opportunity could mean for Eiley and her future.

We also received another incredible blessing this week. A grant application we submitted to help cover Eiley’s DMI intensive therapy, which will take place following her MUSEcell treatment, has been approved! 😭

We were awarded a $5,000 grant through the Bee Brave Foundation.

What makes this gift especially meaningful is that Bee Brave Foundation was created by a family whose daughter also has SMA Type 1. Their support means so much, and we are incredibly grateful. πŸ’œ

Thank you all for the prayers, encouragement, shares, and generosity that continue to make opportunities like these possible for, Eiley, our sweet Ray of Light. πŸ₯ΉπŸ€

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