Support Registry Update

One Week Out From MUSE Cells!! 🤍

Eiley's Continued SMA Journey photo
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Eiley's Continued SMA Journey
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We are officially one week out from Eiley’s MUSE Cell treatment, and I think we are starting to notice some things! 🥹🤍

There are several things we’ve noticed over the last few days, and honestly, I’m not sure what to attribute them to. It could be the MUSE Cells, the combination of all the therapies and modalities we’ve been using with her, or maybe even just a coincidence. 🤷‍♀️🙏🏼🤔 So for now, we’re simply taking note, staying observant 🧐, and seeing what unfolds.

Things we’re noticing: 👀🤍

🍽️ Increased appetite — Eiley has been eating SO much lately! Her appetite has definitely been bigger than usual.

💨 Digestive changes — She has burped several times over the last couple of days, and I honestly can’t remember the last time I heard her burp! 😂 She has also been pooping consistently, even after traveling home from our trip, which is usually when constipation can become more of an issue for her.

😴 A LOT more sleep — The last couple of days, she has been incredibly sleepy. She slept for 4 hours straight during the day and then slept another 12 hours that night! It takes a lot of energy for the body to go through everything involved in this process, so we’re wondering if this is simply her body resting, recovering, and doing the work it needs to do.

🦴 Improvement in her spinal curve — I had her spine X-rayed over the last couple of days, and her curve has improved! 😳🙌🏽 I don’t know what to credit that to either. I’ve been consistently using e-stim with her for the last couple of months, she received spinal massage while we were in Mexico, and of course, she just received her MUSE Cells. Maybe it’s one thing, maybe it’s the combination of everything... But WOW. We are definitely encouraged!

All of this has us wondering if we’re starting to see some positive changes happening internally—almost like her body is “turning back on” and getting down to some deeper layers of healing. 🤍

We will continue supporting her body and staying open to whatever comes next. We truly believe this is only the beginning. 😍🤍🥹🙏🏼

Thank you all for continuing to pray for Eiley, cheer her on, and walk alongside us through this journey. 🤍

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Comments

Chefsandyw 20 days ago

This is so awesome!! She’ll be running soon!! This girl is thriving!!! 🩷🩷

Sandytuite 20 days ago

So happy to hear of some changes. Coincidental or not, we happy to see. As the hours pass you may see more changes that will explain themselves. Gram Tuite