Dec 02, 2025

Giving Tuesday Fundraising

Tomorrow is Giving Tuesday, and it feels like the right moment to s...

Nov 25, 2025

Navigating the Next Steps

Over the last two months since Camila’s scopes, there have been sev...

Sep 26, 2025

GI Scopes

Camila’s scopes went as expected today and she is home resting. Her...

Sep 14, 2025

Upcoming Procedure

We have a difficult update to share that Camila will be going under...

Jul 26, 2025

Wheelchair Is Here!!

I don’t think I need to say much. Her joy says it all!This is the P...

Jul 17, 2025

Commonly Asked Questions

We thought it could be beneficial to share and answer some commonly...

Jun 19, 2025

Diagnosis, WGS and Wheelchairs

We recently received more clarity and questions regarding Camila’s ...

May 17, 2025

Happy Birthday, Camila!!!

Camila, you are two years old today. You are a bright light, shinin...

Apr 11, 2025

Wheelchair & Genetic Testing

We have been so grateful over the past six months for Camila’s mobi...

Mar 20, 2025

Procedure Results

Camila’s infection panel and biopsy results came back remarkably no...

Mar 17, 2025

Procedure Update

Camila’s procedure went as expected. Her Pediatric Gastroenterologi...

Mar 15, 2025

New Procedure Date

Camila's symptoms have worsened. Her procedure has now been pushed ...

Mar 11, 2025

GI Update

Following initial testing, Camila’s Pediatric Gastroenterologist (G...

Feb 27, 2025

Feeding Tube Recovery

Camila is 2 weeks post-surgery today. We thought it might be helpfu...

Feb 13, 2025

Surgery Update

Camila’s surgery was successful! She already had her first full fee...

Jan 30, 2025

Surgery Date & Support

Camila’s surgery is scheduled for February 12th. This will be an ou...

Jan 17, 2025

Nutrition and Surgery

As you may recall from prior updates, Camila has a significant hist...

Dec 19, 2024

Happy Holidays

Before the year wraps up, our family wanted to wish you all the hap...

Nov 12, 2024

Firefly Scooot & Resources

We first wanted to say thank you for all the thoughtful comments on...

Oct 22, 2024

Wheelchair Ramp & DME

Camila has a wheelchair ramp and two of her mobility devices have a...

Oct 11, 2024

Driveway Accessibility

Camila wanted to share the happy news that our driveway has been re...

Oct 05, 2024

Accessible Bathroom

If you look at that side-by-side photo, you might not notice how bi...

Sep 28, 2024

Aquatic Therapy & Accessibility

Hi everyone!We wanted to share an exciting update that we have offi...

Sep 14, 2024

Diagnostic Testing Results

Hello everyone,Frankie and I have been in the wait for test results...

Sep 01, 2024

Thank You, Celebrate Abilities, and Resource

We first wanted to give a big thank you for showing up for our fami...

Aug 22, 2024

Nutrition and Feeding

In the sensory system post, we mentioned that Camila has nutritiona...

Aug 21, 2024

Sensory System

In our prior post, we shared that OT focuses on fine motor developm...

Aug 20, 2024

Fine Motor Development & Meal/Gift Card Update

Camila has been in Pediatric Occupational Therapy (OT) for 7 months...

Aug 15, 2024

Gross Motor Development

Camila has been in Pediatric Physical Therapy (PT) the majority of ...

Jul 07, 2024

What to Expect

Hi everyone!Over the next few days, we will be posting "updates" wi...