Support Registry Update

Ongoing Care Update

In support of
The Weilnhammer Family
View Support Registry
Camila continues to have significant abdominal distention, pain, and difficulty tolerating nutrition despite ongoing treatment for her VEO-IBD flare. Today, her team is doing additional imaging to look for possible bacterial overgrowth, which could be contributing to her symptoms.

Given how limited her nutrition has been and how hard her gut is still working, the likely next step is to move forward with placing a PICC line so she can receive nutrition through her IV while her intestines rest and heal. This is a supportive step to help her regain strength and support recovery while treatment continues.

This hospitalization has unfolded very differently than we ever expected when Camila was first admitted. What we hoped would be a short stay to stabilize her symptoms has turned into a much more complex and difficult course, with escalating interventions and decisions we never anticipated having to face. 

The last several days have been especially hard. Camila has been through so much, and watching her endure compounding medical procedures, discomfort, and uncertainity has been incredibly heavy. We are doing everything we can to say strong, present, and steady for her, even on the days when this feels overwhelming. 

We are deeply grateful for the ongoing love, prayers, and support surrounding our family. Please continue to keep Camila in your thoughts as we navigate these next steps and hold onto hope for relief and healing. 

With love, 
The Weilnhammer Family

Browse Current Support Options

View Options

Comments

Teresa Kolpak

You both are doing a fantastic job making sure that Camila gets the care she needs. I can’t even imagine what you are going through. My thoughts and prayers are with all of you especially Camila. We love you and support you as you navigate her treatment. πŸ’œπŸ™
  • 19 days ago

Mary Reilly

Praying that these interventions will help Camila to feel better and get home. Praying for you, Vanessa and Frankie, for continued strength while navigating this difficult journey and to remember to lean on each other. I’m here if you need or want anything! πŸ’œπŸ™
  • 19 days ago

Coleen Reilly

We will continue to keep you all in our prayers. This has to be exhausting for Camila as well as both of you. As a parent, I’m sure you would trade places with her in a heartbeat
I will light a candle at St Leo’s for Camila πŸ’œπŸ’œπŸ’œ
  • 19 days ago

Megan Reilly

Hope the additional imaging brings more insight into what is causing her symptoms. Sending love to you guys and Camila!!!
  • 19 days ago

Mitch VanSumeren

Love you guys
  • 19 days ago

Michael Reilly

You two are the best parents. Camila could have. Keep having faith.
  • 19 days ago

Eric Vicens

Love you all. Sending lots of hugs and prayers πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ
  • 19 days ago

Kaylene Novak

Thinking of you three πŸ’œ Sending you so much love
  • 19 days ago