Support Registry Update

Wheelchair Ramp & DME

In support of
The Weilnhammer Family
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Camila has a wheelchair ramp and two of her mobility devices have arrived! Look at that smile just beaming through the screen! 
 
Pause for a moment with me. Feel what this feels like with us. 
 
I can’t help but cry out of pure joy for her and relief for myself. I feel deeply overwhelmed by the significance of accessibility for Camila. 
 
Disability parenting is full of hard decisions. The weight of those decisions can feel too heavy to carry. The decision to install a 30ft wheelchair ramp was one of those heavy decisions. There was a permanence compounded by the grief I felt for Camila at the time. I found myself getting caught up in the narratives of others. “But what if she does start crawling, standing, walking, running? Doesn’t this feel a bit premature?” or “You don’t know what her diagnosis is. You should wait until then to decide if she needs a ramp.” It made me question what I was seeing right in front of me. A fiercely independent little girl who didn’t complain much about her disabled body and who probably would love another option to move her body. The decision became easy then and so have the many decisions that have followed. 
 
Camila is working very hard to learn how to use the Permobil Explorer Mini (pictured left) with confidence. It requires many skills and repetition. Each day she becomes increasingly eager to self-initiate movement. Frankie and I feel incredibly lucky to have a front row seat to witness it all. We are also grateful for her providers who are working diligently within sessions to support her success. When she is ready, she will work on skills needed to maneuver the GoBro (pictured right) and Scooot (which is nearly here). 
 
Let’s all celebrate this joy and flood this post with comments. I will read every single one to Camila as a reminder to all of us that she has the best people in her corner. 
 
- The Weilnhammer Family 

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Comments

Jenalyn VanSumeren

Way to go Camila! I love your mami's choice of words to describe you: fiercely independent! Having these devices is going to help you direct your body on your own to where you want to go. I know you are still learning how to navigate the world around you with these cool new tools, but I have no doubt that with your parents and clinical team, you will be exploring your ramp and new driveway, neighborhood, park, community, etc. With you being able to experience the world on your terms more, the world will also get to experience you! And you are such a gift to the world and to this family. I hope you remember, baby girl, how strong you are and how loved you are. As I look at these pictures, I am blown away by your determination and persistence, even when things are tough. I hope Owen can be influenced by your strong will and work ethic. You are fiercely independent, Queen C, and I cannot wait to see where this takes you as you master your newly introduced abilities!!
  • about 1 year ago

Matthew Somers

Wow! I am so happy for you, Camila! What amazing parents and community you have! Your parents have worked so hard to help get you to this point of accessibility. I can't wait for further updates to see how quickly you keep learning and adapting!
  • about 1 year ago

Mary Reilly

Oh my goodness, Camila!!!
Those are some pretty cool mobility devices and I must say you look adorable in them. But more importantly, this equipment is going to allow you to have some autonomy and freedom to choose where you want to explore.
I know it will be a lot of hard work mastering the skills you will need to use these devices but I know you have the strength and determination to do it. Plus you have been blessed with wonderful parents, family and providers you can rely on.
All I keep thinking about is that Dr Seuss book , “Oh, the Places You’ll Go!” I can’t wait to see what new adventures you will have. I will do my best just to try to keep up you.
I love you and am so proud of you. You are a blessing to me. Love, Grandma
  • about 1 year ago

Eprfitz

Can’t wait to see this little adventurer explore with her new devices. Her smile is so heartwarming. ❤️
  • about 1 year ago

Eprfitz

Can’t wait to see this little adventurer explore with her new devices. Her smile is so heartwarming. ❤️
  • about 1 year ago

Teresa Kolpak

Camila, I am so happy for you, you are inspiring. You are overcoming obstacles!!! You’re a lucky little girl who has parents that are doing a great job making sure you have everything you need. I see your happiness and comfort in the pictures. Keep exploring. Love you!!!
  • about 1 year ago

Marykate Fitzgerald

I am so happy for you Camila! Excited to see you be able to explore❤️❤️
  • about 1 year ago

Megan Reilly

We love you Mila!!! So proud of you and love getting these updates on your progress. How exciting to see these mobility devices, knowing how helpful they will be for you in navigating.

Your family is so lucky to have such a strong, fiercely independent little girl in their world! 🔥💕
  • about 1 year ago

Coleen Reilly

Go Camila Go!! So excited to see all the wonderful things you are gonna accomplish in your life. With the amazing and tireless support from your mom and dad, there isn’t anything you can’t do
You are so loved!
  • about 1 year ago

Heidereilly

Camila, it’s so inspiring to see you in your mobility devices! We are so happy for you. You have the best support. Your parents are amazing and we all love you so so much! You are working so hard and we all can see it! We can see the joy and wonder in your eyes! You are awesome!
  • about 1 year ago

Michael Reilly

Camilla is in good hands. Could not ask for better parents. Remember you have a strong support system
  • about 1 year ago

Brigid Reilly

Camila, you are so strong and inspiring! Your smile lights up the room. Remember your parents and family are always there to support and love you. We are happy to see you get the help you need and cannot wait to hear more updates about your progress and achievements:) We love you always!
  • about 1 year ago

Kathleen.short

Camilla is a beautiful and strong little lady!!!! (I love her big, beautiful eyes that melt my 💗!)

Frankie and Vanessa, your positivity and strength are inspirational to us all! Know that you have the love and support of a large network of family and friends!!!

Go, Camilla, Go!!!! 🥰
  • about 1 year ago