All Updates
Dec 03, 2025
December 2, 2025
I know I have been quiet for so long. Partially because I just felt...
Nov 08, 2025
Blood Donation Event
We would be so honored for you to join us and meet you in person as...
Nov 02, 2025
Going home post transplant-day 37
We woke up early this morning. We couldn’t sleep. We’re going home ...
Oct 26, 2025
Day +24-27 post transplant
Day +24 Post TransplantThursday, October 23Good things are happenin...
Oct 23, 2025
+Day 19-23 post transplant
Day +19 post transplantSaturday- October 18 , 2025This week has fel...
Oct 21, 2025
Join Live Prayer Tonight for Avry and family
Hey friendsWhile Jake and Rose have been in isolation for 30 days w...
Oct 20, 2025
Prayer Request Update
Over the past several days, Avry’s condition has taken a turn and b...
Oct 16, 2025
+Day 16,17 post transplant
Day +16 Post TransplantWednesday, October 15I feel like I should se...
Oct 14, 2025
Day +13,14 post transplant
October 12Day +13 Post TransplantThe weekend was pretty chill. Avry...
Oct 10, 2025
Day +10,11 post transplant
Day +10 Post TransplantOctober 9I’m so grateful to be on this team ...
Oct 09, 2025
Last Chance
✨Last chance! Get yours before they're gone. Tomorrow is the deadli...
Oct 09, 2025
Day +8, 9 Post Transplant
Day +8 Post TransplantTuesday, October 7The team came by this morni...
Oct 07, 2025
Day +7 post transplant
October 6, MondayDay +7 post transplantThis morning, Avry woke up w...
Oct 05, 2025
Day 5 post transplant
Day 1 Post Transplant – September 30This morning I woke up instantl...
Oct 04, 2025
Go Gold For Avry
https://spreadgoodshop.com/products/go-gold-for-avry-jo✨ Please con...
Oct 04, 2025
Day 4 post transplant
Friday, October 3Day 4 post-transplantThis morning, Avry’s temperat...
Oct 02, 2025
Day +2 post transplant
October 1, 2025Until you have knelt on the cold hospital floor besi...
Sep 30, 2025
Transplant Number 2 Monday, September 29
Transplant Number 2Monday, September 29There wasn’t much sleep agai...
Sep 29, 2025
Pre transpant update September 28
Sunday, September 28I’d bang my head against the floor for losing m...
Sep 26, 2025
Go Gold For Avry
✨ It’s here! ✨ September is Pediatric Cancer Awareness Month, and w...
Sep 24, 2025
T-shirt campaign
I see some of you are asking where you can buy the T-shirts. Here's...
Sep 23, 2025
9-22-Day 1 – High Dose Chemo Pre-Transplant
Niki was our nurse today and she is so tidy! She keeps all of Avry’...
Sep 23, 2025
September 23-urgent prayer request
Avry has a Broviac catheter—a surgically placed central line with a...
Sep 22, 2025
Sept 21- back to the hospital
Sept 21 – Back to the HospitalWe were all dreading today. Jake and ...
Sep 21, 2025
Sunday, September 21. Back to the hospital for Transplant # 2
“In need of grace, in need of loveIn need of mercy raining down fro...
Sep 21, 2025
Saturday, September 20, 2025
Our Time at Home Is OverIt’s hard to believe we’ve been home for a ...
Sep 19, 2025
2 more days at home
Im not really okay. I can’t believe we’ve come this far. And I can’...
Sep 16, 2025
Go Gold for Avry /pediatric cancer awareness month
✨ Go Gold With Us for Childhood Cancer Awareness Month! ✨In honor o...
Sep 03, 2025
September 2, clinic day post transplant
We’re Home again!!CcaJOYrx came into Avry’s isolation room and the ...
Sep 02, 2025
September 2, 2025 In Clinic. Day 21 post transplant
day 21 post transplantWe’re in clinic today.Avrys heart rate has be...
Sep 02, 2025
Aug 24–Aug 27
Sunday, August 24Late afternoon I ran home. (They’re loosening up o...
Sep 02, 2025
I’m coming HOME!!
There are no words….except a lot of hugs and tears!! We made it thr...
Aug 24, 2025
Sunday, August 24 Make a difference; donate blood
Sunday, August 24What a morning!This did not feel like a Sunday.Eve...
Aug 24, 2025
August 21-23 post transplant
August 21-23It was 3 AM when I switched with Jake. X-ray, labs, and...
Aug 20, 2025
August 19, post transplant
Day 16,Day 8 post stem cell/bone marrow transplant“Job didn't get h...
Aug 16, 2025
August 15, Day 4 post transplant
Tuesday, August 12 – Day One Post-TransplantThe night was long… or ...
Aug 12, 2025
August 11, Transplant Day
Monday, August 11 – Transplant DaySunday night was another long one...
Aug 11, 2025
Sunday August 10 —pre Transplant day
Sunday, August 10Saturday, Avry received her last dose of chemo for...
Aug 09, 2025
August 8 – Day 5 High-Dose Chemo / Day Minus 3 Pre-Transplant
August 8 – Day 5 High-Dose Chemo / Day Minus 3 Pre-TransplantThis m...
Aug 08, 2025
Thursday August 7-day 4 high dose chemo pre transplant
Thursday, August 7Day 4 high dose chemoDay minus 4 bone marrow, ste...
Aug 07, 2025
August 6 – Happy 4th Birthday, Avry Jo!
August 6 – Happy 4th Birthday, Avry Jo!Wednesday, day 3 high dose c...
Aug 06, 2025
August 5-High Dose Chemo/pretransplant
Tuesday — Day 2 of High-Dose Chemo (Day -6 Pre-Transplant)I can’t e...
Jul 29, 2025
July 29, Monday
Curie score updateFriday, July 25 – ContinuedThe morning dragged as...
Jul 25, 2025
July 25, 2025 surgery
Pre transplant Updated scans We were up early this morning—Avry was...
Jul 25, 2025
Prayer Requests
Prayer Requests::• For strength, stamina, and less pain—for me to p...
Jul 25, 2025
July 24, Thursday
July 24, Day 1 MIBG/outpatientProverbs 24:10 (TPT)“If you faint und...
Jul 24, 2025
July 23, Wednesday
Wednesday, golf cart rides and sunshine…I was in the garage and I s...
Jul 21, 2025
Sunday, July 20 Round 5, Day 13
Just 3 more days till her ANC (white blood cells that help fight in...
Jul 16, 2025
July 16, Round 5, day 9
All along… God knew. I keep looking back at our photo memories from...
Jul 15, 2025
Monday, July 14
Monday, July 14Our room felt like it had a revolving door this morn...
Jul 14, 2025
Sunday, July 13 admitted
Sunday, July 13We were having such a nice Saturday evening—just sit...
Jul 13, 2025
Discharged-July 12
Saturday July, 12We’re home!!We were officially discharged this mor...
Jul 12, 2025
July 11, 2025 Round 5 complete
Thursday, July 11 — Round 5, Day 5 // Day 15 of ImmunotherapyThe FI...
Jul 10, 2025
Momcology
July 9, 2025Our Momcology support group sent me a beautiful package...
Jul 08, 2025
July 7-Round 5, Day 1
July 7-Round 5, Day 1MondayWe woke up early this morning because we...
Jun 30, 2025
Monday, June 30 — Hearing Test Update
Monday, June 30 — Hearing Test UpdateHer hearing test was this morn...
Jun 29, 2025
Weekly Prayer 6-29
Prayer Requests for the Week:-Avrys hearing test on Monday (that he...
Jun 29, 2025
June 27 weekly update
June 27We’ve been home a week now — the longest stretch we’ve been ...
Jun 21, 2025
Friday June 20
Friday, June 20We’re on our way home!!!Avry is doing well, and we a...
Jun 20, 2025
Thursday, June 19
Day 3 post opJake came to me last evening and said,“Hey… you could ...
Jun 19, 2025
June 18 day 2 post-op
Yesterday was a sleepy day.Esther and Trace came in late afternoon....
Jun 17, 2025
June 17 AM post op
This morning I was going through emails and messages, and I just fe...
Jun 17, 2025
June 16 pm We’re Back in Her Room – 3 North
June 16 pm We’re Back in Her Room – 3 NorthWe’re settled back in he...
Jun 16, 2025
June 16 PACU Update: Post-Surgery Recovery
June 16 PACU Update: Post-Surgery RecoveryWe’re in the PACU now. Av...
Jun 16, 2025
June 16 Update: She’s out of surgery!
Update: She’s out of surgery!We just met with Dr. Naiditch and rece...
Jun 16, 2025
June 16 Surgery day update 1
Monday, June 16 – Surgery DayWe arrived at the hospital at 8:00 thi...
Jun 15, 2025
Note from Jake
First off, I want to say thank you. Seriously. Every text, call, pr...
Jun 15, 2025
Saturday, June 14
Saturday, June 14Avry had a good night, and we were all up around 6...
Jun 14, 2025
June 13 At Home
Friday, June 13This morning we all woke up upstairs in our own beds...
Jun 13, 2025
June 12 We came home!
Thursday, June 12We got home this morning. Glory had stayed with Tr...
Jun 12, 2025
June 12 AM
We are on our way home!!!!Avry slept so well and is in good spirits...
Jun 12, 2025
Back from the OR 6-11-25 12:35 AM
Avry is back in her room!She did so well. Her vitals were stable th...
Jun 12, 2025
June 11 8:08 pm Update
I just met Dr. Mitchell in the hallway. He’s headed down to do the ...
Jun 11, 2025
Surgery postponed again 4:30 pm
You have got.to.be.kidding.Surgery is now pushed to 6. 🙈🙈🙈Come. On....
Jun 11, 2025
Surgery postponed June 11 4;15 pm
The OR is scheduled for 4:30 this afternoon. It could be 8:30 or 9 ...
Jun 11, 2025
Prayer Request & Praise Update for Avry Jo-Surgery & Scans Ahead
Dear friends, family, and prayer warriors,We’re coming to you with ...
Jun 11, 2025
Wednesday, June 11-
The OR has been rescheduled for later today—not exactly the news we...
Jun 11, 2025
Tuesday June 10
This morning, we woke up with smiles! Avry wanted to sit on the cou...
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