Support Registry Update

June 11 8:08 pm Update

In support of
#miraclesforAvryJo
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I just met Dr. Mitchell in the hallway. He’s headed down to do the aspiration and bone marrow biopsy.

Crystal went to grab us dinner, and I’m sitting here in the cafe with a massive headache from crying so much. It was a traumatic separation. It never gets easier.

Watching her—gripped with sky-high anxiety and absolute terror—as she was taken from me into a completely sterile environment by strangers … it shattered me. She was so afraid. And I was completely helpless.

I just wish there was something more we could do.

I’m planning to talk to Dr. Herman afterwards. Avry is completely immune to both of the sleeping meds—they do absolutely nothing. We need a better plan. This should not be the way it has to go every time.

I feel like I’m pretty strong through everything… except this.

Crys gently reminded me that being strong doesn’t mean I don’t break. That sometimes being strong is allowing myself to feel it all—the helplessness, the heartbreak, the grief.

And tonight… I’m feeling every bit of it.

-Rose

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Comments

Robyn Zampier

That is so gut wrenching, I’m deeply sorry for you and for Avry to go through that! You’re right, they need to figure something out. Praying for you all
  • 6 months ago

Roselyn Smucker

Saying many prayers for you and especially for the doctors to figure out a better plan.💔and also that you will be able to get some rest tonight.
  • 6 months ago

Cindy Hanus

I don’t know you but have become so immersed in Avry’s fight that I feel I do. My heart breaks for all of you. I don’t know how you stay so strong but I guess as a Mama there is no choice. I think of that little cutie going thru all this and I can’t imagine anything harder. My prayers are always with you🙏🏻🙏🏻
  • 6 months ago

Monica Lambright

That is a dreadful experience!😭 Prayers for a solution to this trauma.
  • 6 months ago

Judy King

I hope your strength empowers you to get through to the doctors about Avry's sleep medications and pain medication.
  • 6 months ago