Support Registry Update

September 2, 2025 In Clinic. Day 21 post transplant

In support of
#miraclesforAvryJo
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day 21 post transplant

We’re in clinic today. 

Avrys heart rate has been high the past 2 days. Today she got another dose of G-CSF.  (The white blood cell stimulant) (I don’t like when she gets this because it always makes her more pain) She also got platelets today. Its week three post transplant when we are seeing her numbers rise on their own. This means bone marrow engraftment is taking and we’re waiting for the other cells to join and reproduce more of the goodness!!! It’s exciting! And hard work for her little body. Dr Mian is  pleased. 

He also stressed the importance of bubble wrapping her! Covid is wrecking havoc on these cancer patients here in the hospital and the clinic. If she catches a virus- it would be devastating to her new cells and push off 2nd transplant. We need that 2nd transplant on time!! Because as rapidly as these new cells are dividing, any residual cancer cells are dividing at a much faster speed! We have to be more aggressive than the cancer! 

 We thought today’s appointment would be an hour or so but it turned into- all day. Clinic days are so exhausting! 

We are in a high pressure isolation room and I’m so glad Jake is here!! 

Her heart rate is high and her temp is elevated. Please pray she’s not cranking  a fever and that we can go home tonight!!!! 🙏🙏🙏 


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Comments

lindsay Zimmerman

Praying you can come home tonite!
  • 3 months ago

Cindy Swartzentruber

Praying 🙏 🙏🙏 also praying God would protect her from any viruses and that nothing would hinder her from getting her 2nd transplant 🙏❤️
  • 3 months ago

Chantal.beaton

Praying her little body can fight anything and everything!
  • 3 months ago

Debra Martin

Praying for you! 💞💝🙏
  • 3 months ago

Rachel Diem

I loved your focus the other day on arrows in, arrows out! Praying for you in the fight!💖🙏
  • 3 months ago

Irishlife04

🙏🏻🙏🏻🙏🏻🙏🏻
  • 3 months ago

Robyn Zampier

Praying for protection over your sweet girl, from all viruses and sickness!
  • 3 months ago

Anna Dougherty

Praying!!! 🙏🏻
  • 3 months ago

Jewel Nolt

Praying!
  • 3 months ago

Caroline Donovan

Praying that everything went well afterwards yesterday. May those white healthy cells be dividing as fast as absolutely possible 🙏🙏. I hope Avry didn’t experience too much pain and that she’s in good spirits. 🧡
  • 3 months ago