Friday June 20
In support of
#miraclesforAvryJo
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#miraclesforAvryJo
Friday, June 20
We’re on our way home!!!
Avry is doing well, and we asked if we could go home—
It took some persuading from the surgical team, but the oncology team gave us the green light! 🙌🏼
They even made sure to do some “housekeeping” on her port so we don’t have to go back to clinic for another week. We have just two clinic visits between now and July 3.
If everything goes well, we won’t be admitted to the hospital again until July 6.
We’ve never been home for more than a few days at a time in the last 3.5 months. I’m honestly not even sure I remember how to be home.
Jake is taking this window to hammer down on work that’s been waiting for him back in the valley over the next couple weeks.
Trace went home with Esther today and will be there for a few weeks. So it will
Just be Avry and I at home the next 2 weeks. We’re going to miss him terribly—but he’ll have regular meals, a predictable schedule, and consistency. For that, I’m incredibly grateful.
We’re still being very cautious with Avry’s movements and how we lift her—she’s sore, which is totally expected post-op.
Dr. Cohn came in today, and I was so happy to finally catch her! Every other day she’s come this week, I’ve been out of the room.
Yesterday, Jake brought up a concern we’ve both had: the discrepancy between the scans showing cancerous lymph nodes… and the surgeon not finding any enlarged ones.
Dr. Cohn smiled and said, “I was wondering when y’all would ask that!”
She told us she loves how we never miss a beat and “always ask the best questions.”
She and Dr. Wells have both been puzzled—not concerned.
Jake asked if it could be cancer residue?
She explained that in the radiology room—pitch black, surrounded by huge screens—even to her untrained eye, she couldn’t spot a single lighted cell.
Radiology can still spot lit up spots yet.
I’ve been asking to see the scans, and today she showed us—side by side, the first ones and the latest.
Wow. 😭😭 The difference brought us both to tears.
We are continuing to pray for a Curie score of 0 before transplant.
Please pray with us for that!
We also discussed some early transplant details today.
Because this is Dell’s first ever transplant, the Blood Bank is sending in a special team to oversee everything. It’s a big deal—Dell is honored to have them.
This also means the timing of pre-transplant chemo must be perfectly aligned—so many moving parts.
And since it’s Dell’s first, the media will be covering Avry’s story and the transplant.
Sam, a child life specialist, came in and told us that the playroom is officially ours from now through transplant!
The Snack Shack (open to the floor) will become our own personal kitchen, and we’ll also have private access to the laundry. These spaces will be part of our isolation plan so we have safe and familiar places to go while we’re here long-term.
This 3E team continues to amaze us with their kindness and care. We are so, so grateful.
Avry cried when they told us we could go home.
She said, “But I want to stay here with all my family,”
as she pointed at the nurses.
And later she said,
“Mama, my feet are very slowly. I do not like being a slow girl!! I just want to walk like you and Dad. Like normal. My feet are so slow!!”
Oh, baby girl.
We are so proud of your slow, strong feet.
We’ll walk every step with you. 💛
What a week.
We are so deeply grateful to God—for His goodness, for His presence in the suffering, and for carrying us through the impossible.
For each of you.
For guiding the hands of surgeons.
For surrounding us with nurses who love like family.
For letting us come home—when we didn’t think it was even an option.
For a little girl’s laughter returning, even in pain.
For scans that brought tears of awe.
For the healing already happening.
And for doing exceedingly, abundantly more than we could ask or imagine.
He is faithful in the valley.
He is kind in the chaos.
And He is with us—always
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