Support Registry Update

July 27, 2026 Monday Scan Results

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July 27, 2026 Monday 
Scan Results 

We didn’t get the news we hoped for this morning. 

All of her scans came back clear except one. 

There is a new spot on the top of her skull that needs further testing that has been deemed inconclusive. 

Dr Wells ordered an urgent MRI. We haven’t heard the date for it yet. We expect a call today from Dr Wells. 

Dr Wells told us it may be a false positive. He also said it may be the early stages of relapse. This is the most common spot for relapse. 

We have a trip to the mountains planned for the end of the week. Dr Wells said we will schedule around it because it is important we go and love our family. 

I asked what his gut hunch is? He said he’s about 50/50 with it.  

We are numb.  



Avry Jo is singing her heart out. Christmas songs. Sweet as can be. 

We’re not letting on about our concern to the children. There is no reason to place a burden on their hearts before we know more. So we’ll keep smiling. We’ll laugh, play, and make memories. We’ll choose joy in the middle of the unknown, trusting that our children deserve the security of simply being children. And when the weight becomes too much to carry, we’ll let ourselves fall apart—but only in the quiet, private moments where little eyes aren’t watching and little hearts aren’t absorbing. 

“God has not promised smooth roads and wide,
Swift, easy travel, needing no guide;
Never a mountain rocky and steep,
Never a river turbid and deep.

But God has promised strength for the day,
Rest for the labor, light for the way,
Grace for the trials, help from above,
Unfailing kindness, undying love.”

-our story for God’s glory

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Comments

Sharon Nissley 24 days ago

Oh rose !! Sending hugs 🫂 n prayers!

Alissa Burkholder 24 days ago

I'm so sorry to hear this Rose. Lifting you up to the Father and praying for peace and strength and miracles ✨

Kathryn Torkelson 24 days ago

If my gut can twist like this…I can only imagine what you must be feeling. I’m going to be praying. God can still do big things. I pray you’ll be held. And that your vacation will truly be a restful time. 💞 please feel our love & care in these words that can’t do justice to feelings 🙏🏻 🫂

Llee2834 24 days ago

I'm praying and believing with you that this is a false positive and there is no reason for concern in what they are seeing. Praying for peace for each of you and a relaxing and lovely time away.

Colleen Reyes 24 days ago

I’m choosing optimism. Inconclusive is exactly that. May God bless your hearts, souls and minds as you keep stepping forward. Avry is such a light and she has contributed more to this world than most do in 90 years. The whole world is praying.

Neena Spina 24 days ago

Continuing to pray - and sending big hugs 🫂

Cindy Swartzentruber 24 days ago

So sorry to hear that 😞 will be praying for a miracle 🙏 and that yall can have a very peaceful and relaxing time on your vacation ❤️ making memories ❤️ 🙏🙏🙏

Laura Graber 24 days ago

Oh Rose.... im praying. JESUS😭😭

laura Martin 24 days ago

Oh Jake and Rose, I'm so sorry, We'll continue to pray for a miracle, Lord willing. May God give you abundant grace and peace for each step. May your weekend hold many special memories. Hugs and prayers for you!

LaVera Mast 24 days ago

Praying against a false positive. The lurch my heart feels is nothing compared to yours, I Know. Jesus, be NEAR!

Teresa Martin 24 days ago

🫂❤️‍🩹🙏🏽

Krista 23 days ago

I am praying for you all. I'm so sorry. Prayers for a miracle!🫂

Cassie Campbell 23 days ago

May God hike you all in his hands. Your family is beautiful. Avery Jo is the sunshine ☀️ with that sweet smile and giggle. May you find peace in your hearts as you move forward In the days ahead. I’m praying for a false negative ❤️

Adrianna Becker 23 days ago

Praying🙏🏽😭❤️

ELIZABETH GRIFFIN 23 days ago

I hate this more than anything. Why beautiful little girls and boys have to go through this is something I don't understand. I only pray there is a cure one day. I've followed since day one and just hoped scans would be good. Praying that it's a false positive. Keeping your family especially you as a mom in prayer. Love you guys even though we've never met.

Katie Stoltzfus 23 days ago

Rosa and Jake, I’m so sorry, I will still be praying for a miracle! GOD is still on the throne and HE still answers prayers! (Not always the way we hoped for) But HE is still GOOD 💝 ❤️‍🩹

Tara Koehn 23 days ago

Oh we will pray so hard.. 🙏🙏 love to you

Robin Ammerman 23 days ago

Prayers continued for you and your family. Hope is still alive!💯 I'm going with the false positive. What's the one hard thing to be committed to today? To trust in the one and only living GOD. WHEW! that's hard, but GOD......I believe in Miracles and Avry Jo is already one. 🙏❤️🙏

Courtney Laws 23 days ago

My mom had been told by the doctors that she had cancer in her lungs, etc., but it turned out well in the end. Praying that the spot of concern is benign and that your trip will be a time of rest and full of little surprises from God!

Naomah Miller 23 days ago

Praying and calling on JESUS.

Loretta Thomas 23 days ago

GODs greatest blessings are our children! Stay smiling and make those beautiful memories! Everyday closer for complete healing! 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Nadine High 23 days ago

I enjoy reading your updates!! Sending you our love and prayers!!! Praying for Avry's complete healing and that this would not be a relapse.

Mary Beshires 23 days ago

Praying and sending love and hugs!♥️🙏🏻We serve a mighty God and I believe in the power of prayer!!

Lynn Flanagan 23 days ago

I’ve followed you every day for the whole time. I have a grandson turning five in a week and a half, so they are the same age, which really hits home. Many prayers for you all.

Denise.dandrea 23 days ago

So sad to hear this. Praying its a false positive and benign. Sending live hugs and positive vibes. Enjoy your trip with your family 🙏🙏🙏🩷

Brenda Fryer 23 days ago

You are always in my ❤️ and I pray that news is a false positive.Love you 🙏

Fran Sonis 23 days ago

Praying for a false positive! Sending big hugs to you!

Sharon Zeiset 23 days ago

So sorry to hear, we will continue to pray for you all!

Karen Sobczak 23 days ago

Your little girl have been through so much just praying it’s a false positive and the next one comes back clear injoy ur mountain trip

Cindy Hanus 23 days ago

So sad to hear this! Couldn’t wait to see the results today! I too, will choose optimism! Sending lots of prayers and positive thoughts🙏🏻🙏🏻

Sharon Zook 23 days ago

You don't know me, but unfortunately we have walked the pediatric cancer path also. I just want to say we had a very similar scenerio you are walking through right now. I know the gut wrenching feelings. But also believing God. We never found out exactly the reasons why her test results were abnormal but I am grateful to say she has been cancer free for almost 2 years. I pray it is the same for you!!

Rosalie Oberholtzer 23 days ago

I am so sorry to hear this, it breaks our hearts!! Many prayers and pleas sent to the Throne room on behalf of sweet little Avry and you, her parents! 💖 May you continue to rest secure in the Palm of His Hand! May you hold onto this promise in Revelation 3:12... To him that overcometh will I make a pillar in the temple of God, he will most cert

Rosalie Oberholtzer 23 days ago

... he will most certainly never be put out, and I will write on him the name of my God; and the name e of the city of my God, the New Jerusalem, which descends out of Heaven from my God...

Crystal Zimmerman 23 days ago

I don't even have words... my heart sank to my toes. We are praying praying praying for strength for you and Jake as you go on vacation to soak in every detail- memorize every moment- and store it in that corner of your heart where you can reach for it when the world is falling apart❣️ breathe deep... just take one day at a time! Many hugs and prayers🥲

Jan Debney 23 days ago

Praying for you all. You are strong , you are brave, you’ve got this! Our Rhett said this all the time .

Taylor Yoder 23 days ago

Pleading with the Father for complete healing for Avery. Praying for peace that passes all understanding.

Cindy Swartzentruber 22 days ago

Rose, I was wondering if you could send me your address on this number 434-221-8387, our VBS team would like to send you all something. ❤️