Support Registry Update

Scan week January 18

In support of
#miraclesforAvryJo
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3rd trimester begins 
January 18, 2026 

*It’s scan week.*

We have no reason to believe the burden of disease has increased, but it is scan week nonetheless — and with it comes a wide range of emotions.

On Thursday January 22 at 9:30, Avry will receive her MIBG dye injection, along with CT scans of her chest, pelvis, and abdomen. She will also have her echocardiogram, and they will check her dye placement.

On Friday January 23 at 11:00, she will have the full MIBG scan, followed by  surgery for her bone marrow aspiration and biopsy.

Please keep us in your prayers. Scan-xiety is a very real word in the cancer community. It can feel triggering and even nauseating as we wait and walk through these steps.

Pray that Avry experiences minimal pain after surgery and that we are able to keep her comfortable. And please pray for peace for each of us as we move forward into the next phase of treatment.

On Thursday, January 29, we will return to Dell Children’s to begin the next six-month phase of chemo and immunotherapy. This season will include five full rounds of both chemotherapy and immunotherapy, with the sixth round being chemotherapy alone. These rounds are 30 day cycles. As always, this will depend on how her body continues to respond and progress.

We stand on the brink of a continued but new chapter. We may not know what the next chapter holds, but we do know the Author. And as much as our flesh wants to run far, far away from hospitals and chemo and cancer, we choose to take the next step with courage and faith.

Thank you for praying, for believing, and for standing with us.

Psalm 23:4 
“Yea, though I walk through the valley of the shadow of death,
I will fear no evil;
For You are with me.”
(We love to watch Avry recite this passage from A year ago—little did we know where we would be a year later) 

(Please tag us if you wear #miraclesforAvry on Friday as you pray with us) 

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Comments

Cammie Clark

Oh sweet momma, I will pray and pray some more for precious Avry!! For Trace as he worries so about his best friend, his baby sister. Special prayers for you and Jake as you navigate this week. As you find the strength to keep going. Keep the faith, knowing the Heavenly Father has his arms wrapped around your precious Avry. I pray for your anxiety and nausea, for you to both be able to get some restful sleep. I pray for clean scans!! Pray for the surgery to go easy on Avry, and she not be in pain. Pray her next therapy plan goes easy on her. I pray in Jesus name for he has the power and the love to carry you all down this path.
Sending much love and lots of prayers to you Rose and your precious family.
Cammie ~
  • 14 days ago

Loretta Thomas

Blessings for miracles & cancer free results! Blessings to this gorgeous angel & all her family, friends & Doctors, nurses & special aides! Stay strong and gorgeous baby girl! You are so loved & we want you cured! In GODs hands we pray! AMEN🙏🏻✝️😘
  • 14 days ago

Brenda Fryer

Love and prayers are sent to you.God bless you.
  • 14 days ago

Brenda Fryer

Love and prayers are sent to you.God bless you.
  • 14 days ago

Judy King

Oh my. You guys still have quite the hard road ahead, don't you? I hadn't realized that Phase 3 would be quite so brutal. I still pray daily for Avry and the rest of the family, by name and specific needs. I will continue to do so. Will Jake be able to take at least some time off to give you relief?

My heart has been so touched by your situation and your continued positive testiminy of our loving Lord. Praying for you and wearing my Avry T- shirt is the very least l can do. I prayerfully await your next update after the upcoming scans and tests.

Judy King
  • 14 days ago

Rachelle Stein

I will be thinking of you all. Please God may all go well. You have all been through such a traumatic time.
  • 14 days ago

Tara Koehn

She’s so precious!💖 We will definitely pray for strength and courage as you go through the week.. 🙏
  • 14 days ago

Anna Dougherty

Praying 🙏🏻 praying 🙏🏻 praying 🙏🏻 I cannot even begin to imagine everything you are going thru but so thankful God is with you! God’s greatest blessing on your lives as you continue to trust Him in the dark n unknown! Love 💝 yall lots!!!!
  • 14 days ago

Cindy Swartzentruber

Will be praying for Avery and you all through this next stage 🙏 I know the feeling of scans 🥺 such a sweet little dear,but God has everything in his hands 🙏🙏❤️❤️
  • 14 days ago

Kathryn Torkelson

It was good to hear from you again☺️ I think about your family so often and breathe pleading prayers to our Father for healing for Avry and grace and strength and courage for all of you💞 Praying this week especially 🙏🏻🙏🏻
  • 14 days ago

Marian Byler

I will be praying for Avry and your family!! As you walk this journey!!
  • 14 days ago

Irishlife04

Prayers and Blessings for Avry’s continued return to full health and for all of you as you walk this path with her. She looks so beautiful and healthy. May she continue to heal.
  • 14 days ago

Martha Seitz

Praying that Avery isn’t upset after anesthesia. Prayers that her pain is well controlled. Praying that mom, dad and Trace will have the strength to support Avery during the months of treatment. Praying most for the cancer to be gone and that this family can return to life without cancer.
  • 12 days ago