All Updates

May 31, 2025

Out & About in the Park!!

Today was such a beautiful day, I wanted to get Nick out some. I kn...
May 21, 2025

Going to church!

Nick has been doing lots better since we got home from the hospital...
May 21, 2025

Home from the hospital!

We finally got home on Thursday, MAY 8th. It felt so good to be hom...
May 06, 2025

Still in the hospital!

We finally had a meeting with all of the doctors last Thursday. The...
Apr 27, 2025

Unconsciousness

Thursday night, Nick was asleep and his nurse was with him, so I de...
Apr 27, 2025

Home from Hospital!!!

We finally got home from the hospital on Monday, April 21st. Once w...
Apr 20, 2025

Nick's rest of the week!

Nick has done wonderful since he started the Arithromycin! Nick has...
Apr 16, 2025

Starting a new med!!!

The doctors did end up starting Nick on Arithromycin yesterday! He ...
Apr 16, 2025

Nick's rough few days!

On Sunday, Nick was still in a lot of pain. First thing in the morn...
Apr 12, 2025

Emergency Room Visit

After we got on the ambulance, two of the EMS workers worked on get...
Apr 11, 2025

Scary moment!!!

Monday evening, Nick was very sleepy! He had had a pain patch to he...
Apr 05, 2025

Going home!!!

Well, my Nick Nick got home yesterday! He is still on the Buponorp...
Mar 31, 2025

Hospital Stay # 3

Nick was in excrutiating pain on Sunday, the 23rd(his actual birthd...
Mar 31, 2025

Nick's 16th birthday!

Nick had pain off and on Friday and a little pain on Saturday. On S...
Mar 31, 2025

Hospital Stay #2!

After we got home, that Wednesday, he started acting like he does a...
Mar 31, 2025

Hospital Stay # 1!

On March 11,2025, we had to be at the hospital at 5:30 am to get re...
Mar 11, 2025

Nick's many procedures!

We had to be at the hospital at 5:30 am! Nick was scheduled for his...
Mar 04, 2025

Sleep Safe Bed

Nick's Sleep Safe Bed was finally delivered yesterday! He looks so ...
Feb 27, 2025

Journey

We knew when Robin was pregnant that Nick had a malformation in his...

Support Registry

Browse all the options to help, in one place.