Nick has done wonderful since he started the Arithromycin!  Nick has gotten up for the past 4 days and we went outside in his wheelchair!   We stayed out around 2 hours each day!  He stayed awake alot more too!  He hasn't had to have any rescue meds for pain, except today he had one dose of Tylenol!   
Today was his Daddy's birthday and once we came in from outside, they had us a whole cake for him with party hats and a card!  It was very sweet!  I was bad and gave him a taste of the icing,and even a little bit of crushed Oreo and he loved it!  Well, it wasn't too long after that he was in pain again!  I was really regretting giving him that little bit!  I hated seeing him hurt like that again!  I wanted to start out with Tylenol first to see if it helped and thankfully, it did!    He even got a little sun on his face today from being outside!  He was worn out once we got back inside.  He sleeps a little bit and then wakes up a while and then back to sleep he goes!  He has smiled some again since he was in pain,  so I'm hoping that's over.  Praying for a good night tonight.  Still hoping to go home tomorrow!  Thank you so much for all of the prayers!