Dec 04, 2025

Breathing

I have struggled more with sharing as we've moved into this part of...

Nov 14, 2025

November News

I’ve been meaning to write an update for a little while but just ha...

Oct 01, 2025

Second September

It is September 30th, the last day of Childhood Cancer Awareness Mo...

Sep 08, 2025

End of Summer

It's been about a month and once again, we have so many little upda...

Aug 16, 2025

August adventures

Oofta, so many little updates in the last month! I’m not sure how i...

Jul 22, 2025

Summer

Is it seriously July 22nd already? The summer is flying by. We've b...

Jun 21, 2025

Long Term Maintenance- Week 1

This has been a long week. I’d read warnings in the Facebook group ...

Jun 16, 2025

One Year

Anniversaries can be strange and this one feels particularly so. It...

Jun 01, 2025

Five-hundred twenty-five thousand, six hundred minutes

Five-hundred twenty-five thousand, six hundred minutes, five-hundre...

May 20, 2025

A big milestone and a long update

I am feeling all the things tonight. Ronan had his last lumbar punc...

May 04, 2025

May days

We have had a few weeks of highs and lows around here. Our very fir...

Apr 17, 2025

All the thoughts

Tomorrow is the beginning of Interim Maintenance 2. It is the last ...

Apr 08, 2025

April Moves

Well we all breathed a big sigh of relief this weekend, and are fin...

Mar 18, 2025

Marching on

We are a week into the second half of Delayed Intensification, or D...

Mar 10, 2025

Mini Update

We finally made counts (ANC above 750) on Friday so we are back up ...

Mar 04, 2025

On Hold

We are officially on hold for a second week due to low counts. This...

Feb 20, 2025

February days

We are officially halfway through the Delayed Intensification phase...

Feb 11, 2025

Storm Cloud Warning

We are at Day 15 of the Delayed Intensification phase of treatment....

Jan 31, 2025

New Day, New Challenge

Well, we are five days in, and Delayed Intensification is already g...

Jan 27, 2025

Inhale, Exhale

Well we are back up at Ronald McDonald House, all set to start Dela...

Jan 10, 2025

January

Well, we made it into 2025. We had a good Christmas, though we have...

Dec 23, 2024

It ‘‘twas the night before the night before Christmas Eve

This childhood cancer journey is a crazy one. I feel like we are co...

Dec 06, 2024

Another One Bites the Dust

For those of you who saw the partial update, or the blank update, I...

Nov 27, 2024

Still In It

Yesterday was the first sedation appointment we've had in over 2 mo...

Nov 14, 2024

5 months out

It was 5 months ago tomorrow that Ronan and I headed up to the emer...

Oct 16, 2024

Milestones and Moments

Round 1 of Blina is complete! Ronan is officially unhooked, his por...

Oct 03, 2024

October

This has always been my favorite month. I love the change in season...

Sep 18, 2024

Phase 3

Well, we made counts this week. We were admitted today to begin pha...

Sep 13, 2024

The Latest

We’re in a bit of a holding pattern around here. Ronan was supposed...

Sep 03, 2024

Forgotten Birthday Post and a Mini Update

I didn’t realize that I didn’t share my birthday post on the site! ...

Aug 31, 2024

Just an Update

It’s been a calm week around here, as far as health management goes...

Aug 24, 2024

Birthday Countdown

Ronan is the kid who starts planning his next birthday the day afte...

Aug 17, 2024

Seizure Scare

Just when I begin to exhale, and things feel as though we’ve levele...

Aug 09, 2024

Two Weeks

Well we’ve now been home for two whole weeks, which has been wonder...

Aug 01, 2024

Ordinary (extrordinary) Moments

We made it home on Friday as we hoped! Ronan’s ANC jumped to over 5...

Jul 25, 2024

The News We Needed

We are in remission! Ronan’s end of induction bone marrow (the seco...

Jul 21, 2024

A Rising ANC and the Big Haircut

Big news around here, the ANC jumped from 160 yesterday to 410 toda...

Jul 20, 2024

An Enigma

A real Ronan smile on camera with a real Jack smile, in a snuggle. ...

Jul 18, 2024

Fever and Neutropenia

Well, so much for best laid plans. Ronan is back in the hospital to...

Jul 16, 2024

End of Induction

So it's a little early to share much of an actual update. However, ...

Jul 14, 2024

Rare Days Off

We have tried to enjoy our 3 days away from the hospital. Auntie Mi...

Jul 10, 2024

Quiet moments

Yesterday was one of those days I was feeling all the emotions of t...

Jul 06, 2024

Life on the Outside

Well, our wish came true. Ronan got to leave the hospital on the af...

Jul 03, 2024

Independent for Independence?

Continued thanks for everyone's texts, calls, comments, donations, ...

Jun 30, 2024

We would rather be berry picking

Today was a hard day. Medically, things are steadily improving. We ...

Jun 28, 2024

A step forward and a sugary wrench

Apologies for my extraordinarily long last post, there has been so ...

Jun 23, 2024

Kidneys, A Trip to the PICU, and back

First, we want to say thank you so much to everyone who has called,...

Jun 20, 2024

Has it only been 5 days?

The last five days have been a total blur. It feels like it's been ...

Jun 18, 2024

Shock and Awful

I've been sitting here trying to figure out how I write all this do...

Jun 18, 2024

In Support of Ronan

The Support Registry was just created.You can see all support oppor...