Continued thanks for everyone's texts, calls, comments, donations, gift boxes, dog sitting, Jack sitting, short visits of reprieve for us, etc. We so appreciate all of you ♥️

We are going into our 20th day here at the hospital. The last few days have been super difficult with Ronan feeling pretty awful. It feels like our 100th day. We are very close to being able to discharge at least down to Ronald McDonald, until induction is complete. It is day 17 of induction, with 12 more days to go. On day 29, Ronan will have another LP with intrathecal chemo, and another bone marrow aspiration. The hope of hopes is that on this day, his bone marrow shows no evidence of disease, and he is technically in remission. Whether this is the case or not greatly affects how intense the next phase of treatment will be. 

We got our blood sugar monitor in place yesterday so we won't have as many pokes once we leave. Renal labs have been trending in the right direction but they took a big leap that direction today and my heart is happy. We have spent Ronan's whole life worried about this numbers and to see them get as high as they did during the beginning of his treatment was terrifying. He will likely continue to need some correction to his acid base balance for a little while (remember the renal tubular acidosis he had as a baby?) The kidney injury from his Tumor Lysis Syndrome is bringing that out again. It may also resolve with time though. 

Big goal today is to drink enough to make renal give us the go ahead, and is to poop so that nausea will be better (I really think they are related!) So far this morning, we've had a decent breakfast and no puking so yay! We also have to complete our education today with diabetes (delivering supplies from pharmacy) and on an epi pen (as one of the chemotherapy agents can sometimes cause delayed allergic reactions.)

I am crossing fingers and toes for a discharge later in the day today. We'd love to get to enjoy fireworks over the River from the perfect window view at Ronald McDonald House, together as a family tomorrow night. (Jack is coming back to Oregon today.) It actually makes me tear up writing that because it's been 20 days since we could all stay together. Ronan also loves the 4th of July so much. Cross all your finger and toes!!

Assuming we will be able to discharge because I'm only putting positive energy into the universe....we will follow up with the oncology clinic from here on out, through July 15 for chemo, any needed infusions, etc. After the bone marrow aspiration that day, we will know what the next 6-9 months look like.

Positive side note, we did find out that Ronan's leukemia cells had a certain set of chromosome abnormalities which have been shown to make them more responsive to treatment. We are putting into the universe that his response to chemo was so good, that that's why his tumor lysis was so significant. Please send our little warrior all the healing and positivity you can. And go donate blood in his honor ♥️

This was last year 🇺🇸🎇