In Support of Mylah
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Meet Mylah.
This bright, brave little girl was diagnosed with status epilepticus epilepsy—a severe form of epilepsy that’s incredibly hard to control once a seizure starts. Her family has faced more ICU stays, ambulance rides, and emergency interventions than any parent ever imagines.
This bright, brave little girl was diagnosed with status epilepticus epilepsy—a severe form of epilepsy that’s incredibly hard to control once a seizure starts. Her family has faced more ICU stays, ambulance rides, and emergency interventions than any parent ever imagines.
A diagnosis like this changes everything.
Research shows it can cost up to 10 times more to raise a child with a complex medical diagnosis compared to a neurotypical child. It adds up fast—and for this family, it already has. They’re facing over $100,000 in medical bills, and with no medical insurance, the weight of lifesaving care has become overwhelming.
Research shows it can cost up to 10 times more to raise a child with a complex medical diagnosis compared to a neurotypical child. It adds up fast—and for this family, it already has. They’re facing over $100,000 in medical bills, and with no medical insurance, the weight of lifesaving care has become overwhelming.
They’ve done everything they can on their own.
But no family should have to walk this road by themselves. After so many friends and community members asked how they could help, Mylah’s family finally said yes to receiving support.
But no family should have to walk this road by themselves. After so many friends and community members asked how they could help, Mylah’s family finally said yes to receiving support.
How you can help.
The greatest need right now is simple: lifting this family up, caring for them, and donating if you’re able. Every act of kindness helps them keep fighting for Mylah’s wellbeing without carrying this burden alone.
The greatest need right now is simple: lifting this family up, caring for them, and donating if you’re able. Every act of kindness helps them keep fighting for Mylah’s wellbeing without carrying this burden alone.
Updates from Mom.
Ally will be sharing updates about Mylah’s journey here—honest moments, small victories, and ways you can continue to stand with them.
Ally will be sharing updates about Mylah’s journey here—honest moments, small victories, and ways you can continue to stand with them.
Thank you for showing up for this family.
Your support means more than you know.
Your support means more than you know.
Updates
Keep up to date as needs change.
Dec 29, 2025
Hard Day, Celebrating small Wins.
Goodmorning,I am sad to update this morning. As we are currently si...
Dec 24, 2025
Merry Christmas!
It’s a very special holiday to have our family together and celebra...
Dec 19, 2025
Update!
Hi All,We are still working with Akron Children’s to get on some ki...
Gift Cards
- Created Dec 05, 2025
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Words of Support
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