In Support of Mylah
Support Registry
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Meet Mylah.
This bright, brave little girl was diagnosed with status epilepticus epilepsy—a severe form of epilepsy that’s incredibly hard to control once a seizure starts. Her family has faced more ICU stays, ambulance rides, and emergency interventions than any parent ever imagines.
This bright, brave little girl was diagnosed with status epilepticus epilepsy—a severe form of epilepsy that’s incredibly hard to control once a seizure starts. Her family has faced more ICU stays, ambulance rides, and emergency interventions than any parent ever imagines.
A diagnosis like this changes everything.
Research shows it can cost up to 10 times more to raise a child with a complex medical diagnosis compared to a neurotypical child. It adds up fast—and for this family, it already has. They’re facing over $100,000 in medical bills, and with no medical insurance, the weight of lifesaving care has become overwhelming.
Research shows it can cost up to 10 times more to raise a child with a complex medical diagnosis compared to a neurotypical child. It adds up fast—and for this family, it already has. They’re facing over $100,000 in medical bills, and with no medical insurance, the weight of lifesaving care has become overwhelming.
They’ve done everything they can on their own.
But no family should have to walk this road by themselves. After so many friends and community members asked how they could help, Mylah’s family finally said yes to receiving support.
But no family should have to walk this road by themselves. After so many friends and community members asked how they could help, Mylah’s family finally said yes to receiving support.
How you can help.
The greatest need right now is simple: lifting this family up, caring for them, and donating if you’re able. Every act of kindness helps them keep fighting for Mylah’s wellbeing without carrying this burden alone.
The greatest need right now is simple: lifting this family up, caring for them, and donating if you’re able. Every act of kindness helps them keep fighting for Mylah’s wellbeing without carrying this burden alone.
Updates from Mom.
Ally will be sharing updates about Mylah’s journey here—honest moments, small victories, and ways you can continue to stand with them.
Ally will be sharing updates about Mylah’s journey here—honest moments, small victories, and ways you can continue to stand with them.
Thank you for showing up for this family.
Your support means more than you know.
Your support means more than you know.
Updates
Keep up to date as needs change.
Feb 21, 2026
Progress
A little update on Mylah. We have been seeing improvement with her ...
Feb 08, 2026
Healing isn’t Linear
This post is hard to make, but we are working hand in hand with bot...
Jan 27, 2026
Mylah was Life Flighted
Good morning,Mylah was life flighted last night due to having a foc...
Gift Cards
Lend a Hand
Volunteer for errands, childcare, or other needs.
No Needs Specified, Yet
The family hasn’t specified needs at this time. Offer a hand instead to let them know you are willing to help.
Choose a different month below:
- Created Dec 05, 2025
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- Emergencies or Major Accident
- Report Support Registry
Support Registry
Browse all the options to help, in one place.
Words of Support
Donate, send meals, or lend a hand to include words of support.
Meg Sir Louis
Anonymous
Kathy Rieter
GG and Grandpa Z
Quinn Johnston
Anonymous