In Support of Keeping Our Heads Afloat

Hi everyone,
My name is Stephanie.
I'm reaching out to let you know that my family and I need some help. Those who know me know and understand how difficult it has been with my surgeries and ER visits for illnesses that overwhelm me as I try to keep going forward. On top of being disabled, I also run a business that has me traveling, and it's only every few months that I do this (EDIT 9/26: I cannot travel at this time any longer...). Some of my serious health issues have been:
IIH/Pseudotumor Cerebri, Degenerative Disc Disease (with a herniated disc), and anemia that affects my movement (dizzy spells/faint).
Currently, my IIH has been so bad that I have been to the ER two times this month (May 2026)(EDIT 9/26: ended up having multiple ER visits in May, June, July, and August, and 9/1/26 I needed emergency surgery to save my right eye due to IIH).
I work as much as I can Part-time (EDIT 9/26: currently on unpaid medical leave), so having to stop for recovery has put us behind on a lot of bills and rent (EDIT 9/26: not only this reason, but we are having to move again. We are using resources to help with moving services, but it has become unsafe in our neighborhood as well). It has been between choices of utilities, groceries, and gas for work. Surgery is currently on the table again, and it may be either a brain shunt or a brain stent. (EDIT 9/26: I ended up having a brain stent, and needing a second one on the left side, 10/27 or sooner.) 
With multiple surgeries and ongoing medical care, life has become really challenging. Our situation is urgent, and my family and I are trying to keep our heads above water. 

We have created a support registry called "Keeping Our Heads Afloat" to make it easier for you to help. Here’s how you can support: