Welcome to our updates page

This page was designed to help keep our loved ones updated on Jett. We will do our best to update for each specialist appointment, treatment and intensive therapy sessions. We will post pictures as he continues to meet new milestones. An email will be sent to your account anytime that an update is made. There is no need to have a social media account for access to this page. 

Everyone is often asking about gifts for Jett. We can utilize this page as a savings to put towards major costs that will directly benefit Jett (intensive therapy sessions, payments towards his communication device, an accessible van, etc.).

Thank you for your endless support 
The Webber Family

GNAO1 is a rare genetic disease that affects around 350 people in the world. GNAO1 was first discovered in 2013.
The most common initial symptoms include low muscle tone, developmental delay, abnormal movements and seizures. There is a wide spectrum of people who are affected. Some individuals are nonverbal with trachs to help them breathe and feeding tubes. Some can walk and talk. Jett falls somewhere in the middle. GNAO1 is a progressive condition.  Jett sees five specialists and a Registered Dietician. Jett goes to Kids Center for Pediatric Therapies. He participates in Physical and Occupational therapy twice a week and speech therapy once per week there. Jett also goes to developmental preschool four days per week where he receives services. Jett is so determined and loves a challenge.