All Updates

Feb 08, 2026

Supporting Frankie: An Update and Request for Help

Since the end of September, our family has been navigating a diffic...
Jan 01, 2026

Happy New Year

Happy New Year to all our friends and family, and thank you for bei...
Nov 19, 2025

In Loving Memory of Grandma Anzy

On Friday, November 14th, 2025, Grandma Anzy, a loving mother, dear...
Nov 11, 2025

Grandma Anzy

I am sharing this with a heavy heart to ask for your thoughts, pray...
Nov 02, 2025

Gratitude

We were truly overwhelmed by the flood of birthday wishes I receive...
Oct 14, 2025

The Sickness Season is Here

Frankie has been fighting a tough lower left lung infection, which ...
Jun 14, 2025

Summer is HERE!!!

Frankie has seen a pretty significant uptick in seizure activity. W...
Feb 23, 2025

The FLU

Our family has been facing multiple challenges as we've been naviga...
Jan 20, 2025

A Nice Break

We were able to go to the Oregon Coast for a few days thanks to the...
Dec 29, 2024

New Year... New Experiences

Over the past few weeks, there has been much loss in the Rett commu...
Dec 08, 2024

December 08, 2024 Update

Thank you for your amazing support!Thanks to everyone for donating ...
Dec 01, 2024

December 01, 2024 Update

Frankie's Challenge: Seizures Getting TougherWe are going through a...
Nov 10, 2024

November 10, 2024 Update

Frankie Gilman Needs Our Support Due to Health Challenges and Famil...
Oct 05, 2024

Support Frankie Gilman

We recently got to attend a zoom meeting with Advocacy Abby. DId yo...
Aug 19, 2024

In Support of Frankie Gilman

The Support Registry was just created.You can see all support oppor...

Support Registry

Browse all the options to help, in one place.