Frankie has seen a pretty significant uptick in seizure activity. We have several medical appointments and procedures scheduled for this summer. We kick it off with her GJ feeding tube change, then proceed to Neurology and a VNS battery change, followed by the Heart Center and possibly the introduction of beta blockers to help with deregulation and prolonged QT. We are incredibly grateful to our dear friends who gifted us a JOSI stroller, allowing us to be out and about in the beauty that surrounds us. We are trying to save for an electric trike so we can also use the stroller as a trailer and hit the trails. Frankie loves to be outdoors, going fast and the ocean. If you can help us make any of these things happen with a donation, we would be forever grateful! Happy Summer, Everyone!!!