Over the past few weeks, there has been much loss in the Rett community. Paul and I realize how precious time truly is. We must make as many memories with Frankie and her brothers as possible. Thanks to the generosity of a dear friend, we are taking Frankie to the Oregon Coast in a few weeks. If you'd like to help with our trip (gas money or gift cards) would be greatly appreciated. The beach is Frankie's happy place. Hopefully, we'll see fewer seizures and autonomic dysfunction as there's something about the ocean that calms her system. Happy New Year everyone!