Thank you for your amazing support!

Thanks to everyone for donating and sharing our SupportNow registry. The help we have received has really been good for our family. Frankie and I had a long day traveling over the mountain to get her GJ (Gastro-Jejunal tube, used for feeding) changed. It was painful for her this time. She's had more seizures (sudden brain electrical activity changes causing jerks or loss of awareness) and shed many tears. It's been a difficult week for us. Next, we have a cardiology (heart doctor) appointment this week to discuss Beta Blockers. We also have an appointment with her pediatrician to figure out what's causing hives on her trunk. Send good vibes.