In Support of Colbie's Compass
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🌟 Colbie’s Compass
Following the Gibson Family’s Journey with CRELD-1 Epilepsy
At just 22 months old, sweet Colbie Gibson is navigating an extremely rare genetic condition causing epilepsy called CRELD1.
This condition causes her to have severe, difficult-to-control seizures and developmental challenges. Because there’s very little research or standard treatment, her family must seek specialized care across the country.
This condition causes her to have severe, difficult-to-control seizures and developmental challenges. Because there’s very little research or standard treatment, her family must seek specialized care across the country.
Colbie will soon undergo a corpus callosotomy surgery to help reduce her seizures. Recovery will be long and will require multiple therapy intensives to give her the best chance to thrive.
Ashley (Colbie’s mom) will post updates here as they move through this journey. Your support — whether through donations, sharing, or encouragement — will help lift a huge weight off the Gibson family.
Upcoming Needs & Costs
💜 Therapy Intensives —
- Intensives: Idaho or Minnesota $6,000/each, Marsh Monsters $800-$1200 each, Beelievability $2000-$4500/each, Reins of Grace Hippotherapy
- Craniosacral therapy $65/session
- Chiropractic care
💜 Specialized Treatment and Equipment
- Vibration Plate
- Red Light Therapy
- Electric bike (for co-riding and/or adaptive bicycle for just Colbie
- PEMF Therapy Mat
- Various adaptive equipment
💜 Major Medical Travel
- Cross-country trips for surgery — Boston or Columbus (still getting second opinions to choose the surgeon)
- Multiple therapy and treatment locations around the nation
How You Can Help
This will be a long road for Colbie and her family — but together as a community, we can make it more manageable.
Your kindness will help cover:
✅ Travel for surgery & treatments
✅ Costly but crucial therapies
✅ Recovery tools & resources
Every prayer, share, and dollar brings Colbie one step closer to the care she needs. 💗
Those who would like to help the family can:
- Choose from Support Registry options
- ‘Share’ to Spread the Word to family and friends
- ‘Follow’ Updates to stay informed
Thank you.
Updates
Keep up to date as needs change.
Lend a Hand
Volunteer for errands, childcare, or other needs.
No Needs Specified, Yet
The family hasn’t specified needs at this time. Offer a hand instead to let them know you are willing to help.
- Created Aug 08, 2025
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- Disability
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Words of Support
Donate, send meals, or lend a hand to include words of support.
Belinda Woodson
Melissa Davis
Belinda Woodson
Julieucpl
Lisa Gibson
Jgray6711