In Support of Colbie Gibson
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🌟 Colbie Gibson 💜🦓
Following the Gibson Family’s Journey with CRELD1 Epilepsy
At just 8 months old, sweet Colbie became number 19. She was diagnosed with an extremely rare genetic condition, called CRELD1 that now has ~30 children in the group worldwide.
This condition causes her to have 4 types of severe, difficult-to-control seizures, developmental delays, feeding challenges, hypotonia, CVI, and dystonia. Because there’s very little research and NO treatment, her family must seek specialized care across the country.
This condition causes her to have 4 types of severe, difficult-to-control seizures, developmental delays, feeding challenges, hypotonia, CVI, and dystonia. Because there’s very little research and NO treatment, her family must seek specialized care across the country.
Colbie was the first CRELD1 child to bravely undergo a Corpus Callosotomy brain surgery, just one month ago to reduce 2 of her 4 seizure types. Recovery will be a long climb and require multiple therapy intensives to give her the best chance to thrive.
Ashley (Colbie’s mom) will post updates here as they move through this journey. Your support — whether through prayer, donations, sharing, or encouragement — will help lift a huge weight off the Gibson family.
Upcoming Needs & Costs
💜 Therapy Intensives —
- Infinity Neuro: Idaho or Minnesota $6,000/each
- Marsh Monsters $800-$1200 each (Colbie does this once a month)
- Beelievability $2000-$4500/each (Scheduled in March, April, May, and June),
- Reins of Grace Hippotherapy ($1900-$2400)
- Craniosacral therapy $65/session (monthly)
- Chiropractic care (every 2-4 weeks)
- Weekly First Steps and Outpatient PT, OT, SLP, Vision and Aquatics
💜 Specialized Treatment and Equipment
- Vibration Plate
- Red Light Therapy
- Electric bike (for co-riding and/or adaptive bicycle for just Colbie)
- PEMF Therapy Mat
- Various adaptive equipment
- Researching Hyperbaric oxygen therapy
- Researching Stem cell treatments
- Kyrios Suit
- E-stim
- Inky Dinky Saddle
💜 Major Medical Travel
- Multiple therapy and treatment locations around the nation
- Monthly appointments at Nationwide Children's and Cincinnati Children's
How You Can Help
This will be a long road for Colbie and her family — but together as a community, we can make it more manageable.
Your kindness will help cover:
✅ Travel for appointments, therapy & treatments
✅ Costly but crucial therapies
✅ Recovery tools & resources
Every prayer, share, and dollar brings Colbie one step closer to the care she needs. 💜
Those who would like to help the family can:
- Choose from Support Registry options
- ‘Share’ to Spread the Word to family and friends
- ‘Follow’ Updates to stay informed
Thank you.
Updates
Keep up to date as needs change.
Lend a Hand
Volunteer for errands, childcare, or other needs.
No Needs Specified, Yet
The family hasn’t specified needs at this time. Offer a hand instead to let them know you are willing to help.
- Created Aug 08, 2025
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- Disability
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Support Registry
Browse all the options to help, in one place.
Words of Support
Donate, send meals, or lend a hand to include words of support.
Breana Carsey
Shannon Hill
Debbie Coffman
Laura Johnson
Jenny Gibson
Tamara Drudy