Support Registry Update

Surgery

In support of
Colbie's Compass
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🩷✨️Colbie update: She had a great couple months on the new seizure medication, unfortunately that was yet another "honeymoon phase" and we are back to our surgical treatment option. We will be admitted to Nationwide Children's Jan 19-21 for another EEG and a sedated brain and brainstem MRI. After these scans, the neuro and neurosurgery teams will do another surgical conference to look at the collected data and make sure the Corpus Callosotomy is still the surgery she needs. We are currently penciled in for surgery February 3rd at Nationwide to hold a spot.

Prayer requests: 
• no major episodes or illness prior to surgery 
• Jordan and I stay focused on this path (don't second guess, doubt, be led astray) and looking toward all the potential this treatment can unlock for Colbie
• All doctors and staff to use every ounce of knowledge and experience to give their full professional opinions during conference even if that means someone has a different treatment idea/approach 

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Comments

Shannon Hill

We will remember all of these prayer requests. Sending our continued love and support 💜
  • 23 days ago

Bvfarmhackman79

Praying for your sweet Angel and prayers for guidance upon the Doctors
  • 23 days ago