In Support of Wheels for Santi
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🇨🇱 Versión en Español Más Abajo
🇺🇸 Support Santi's Journey
At just 15 years old, Santi is facing a battle that no child should have to endure.
Santi lives with Duchenne Muscular Dystrophy (DMD), a progressive genetic condition that causes muscles throughout the body to weaken over time. As the disease progresses, everyday activities become increasingly difficult, and mobility equipment becomes essential for maintaining independence, safety, and quality of life.
Despite the challenges he faces, Santi is an incredibly bright, kind, and determined young man who continues to embrace life with courage and optimism.
His parents, Matias and Patricia, along with his sister, have dedicated their lives to giving Santi every opportunity possible. Their family made the difficult decision to come to the United States so Santi could participate in a promising clinical trial that may help improve his future. Because of their unique circumstances, they do not have access to health insurance coverage, leaving them responsible for many critical medical expenses on their own.
Today, they are facing an urgent need.
Santi's wheelchair—the very thing that allows him to move through the world, participate in daily life, and maintain his independence—has reached the end of its usable life. It no longer fits him properly, has significant wear and damage, and is no longer safe for him to use.
The cost of a replacement wheelchair is $40,296, even after receiving a cash discount.
No family should have to carry a burden like this alone.
A wheelchair is not a luxury for Santi. It is his mobility, his independence, his ability to attend appointments, spend time with friends and family, and continue experiencing the world around him.
Together, we can help make sure Santi has the equipment he needs to stay safe, healthy, and engaged in life.
Every donation, share, prayer, and word of encouragement makes a difference.
Let's come together as a community and help give Santi the freedom to keep moving forward.
🇨🇱 Apoyemos a Santi en su camino
Con solo 15 años, Santi enfrenta una realidad que ningún niño debería tener que vivir.
Santi tiene Distrofia Muscular de Duchenne (DMD), una enfermedad genética progresiva que provoca el debilitamiento gradual de los músculos del cuerpo. A medida que la enfermedad avanza, actividades cotidianas que muchos damos por sentadas se vuelven cada vez más difíciles, y los equipos de movilidad pasan a ser una necesidad fundamental.
A pesar de los desafíos, Santi es un joven brillante, cariñoso y lleno de vida. Su sonrisa, su fortaleza y sus ganas de seguir adelante inspiran a todos quienes lo conocen.
Sus padres, Matias y Patricia, junto a su hermana, hacen todo lo posible para brindarle la mejor calidad de vida. Como familia, tomaron la difícil decisión de viajar a Estados Unidos para que Santi pudiera participar en un ensayo clínico que podría marcar una diferencia importante en su futuro. Debido a sus circunstancias, no cuentan con acceso a un seguro médico, por lo que deben asumir muchos de sus gastos de manera particular.
Hoy enfrentan una necesidad urgente.
La silla de ruedas de Santi, que es literalmente su forma de desplazarse y participar en el mundo que lo rodea, ya no es segura. Se encuentra deteriorada, dejó de ajustarse correctamente a sus necesidades y necesita ser reemplazada cuanto antes.
El costo de una nueva silla de ruedas es de $40,296 dólares, incluso considerando un descuento por pago al contado.
Ninguna familia debería tener que enfrentar un gasto tan grande por sí sola.
Para Santi, una silla de ruedas no es un lujo. Es su independencia, su seguridad, su acceso a la educación, a sus tratamientos, a compartir con su familia y amigos, y a seguir disfrutando de la vida.
Como comunidad, podemos unirnos para ayudarlo.
Cada aporte, sin importar el monto, cada oración, cada mensaje de apoyo y cada vez que compartan esta campaña, nos acerca un paso más a la meta.
Ayudemos a Santi a seguir avanzando, explorando el mundo y viviendo la vida que merece.
Updates
Keep up to date as needs change.
Jun 09, 2026
Fundraiser update! 💙
We have now raised $13,521.78 toward Santi’s new wheelchair!!!We ar...
Jun 06, 2026
We are at 14%!!!
Hi friends!I wanted to share a quick update and say thank you becau...
Jun 03, 2026
First Update!!!!
🇺🇸 English: First UpdateFirst of all, THANK YOU. Seriously. When I ...
- Created Jun 01, 2026
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